Microphthalmia - anyone from the UK?

Microphthalmia
#1

Hi,

I was wondering if there is anyone from the UK in this group who might be able to share their experiences with me. Particularly with regard to the sort of questions that the family should be asking the specialists and the kind of treatment that they have been receiving. I would also like to know what support is available from organisations and the goverment in the UK, and if it exisits how you have found it to be.

Una

#2

Una,

I am from the US but have you checked out the MACS website yet? It is from the UK and is for families of children born with anophthalmia and microphthalmia.

Maybe you can hook up with someone close by? Heidi mom to AJ age 5 1/2 years bilateral micro and no optic nerves

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