I have pancreatic exocrine insufficiency and would like to talk with others who have the same condition. My wife and I have modified my diet to mainly vegetarian low fat which has made a vast difference to the amount of pain i experience and the number of attacks. I take creon forte with all meals. I would like to learn more from others who have the same condition.
I’m a 47 year old male in excellent health with no pathology for the disease and was struck with a severe acute attack of idiopathic pancreatitis while working a trip in London, England last December 9, 2006. I was in hospital there 12 days and recovered enough to be able to make the long trip home to the US for a nearly three month recouperation. I’m feeling great, gained 12 of the 30 pounds I lost back, yet still have a giant psuedocyst which my doctors are monitoring. Has anyone ever had a PC > 11.6cm x 4.6cm resolve itself without surgical (open surgery) intervention? This experience has scared the daylights out of me, but I’m feeling great now and haven’t had any pain for nearly two months and am off all pain meds! Life after Pecocet is another novel! 
Good luck to everyone suffering with this disease and to your families holding your hands. Without them, it’s impossible to think about where we’d be!
I am so happy to finally be able to talk to others with Pancreatitis. It is the strangest disease and it seems as though everyones’ is different in some way or another. We have the best pediatritians. They actually listen to my Daughter and I, and want to help. My Daughter (11) has been to see the Pain Clinic doctors and to see a psychologist for this. We are discussing a Pain Management program for this summer in Rochester. It is a 3 week outpatient program and I just hope that her insurance will cover this. Has anyone else gone through this program? If so, please respond…
I’ve had pancreatitis for about 4 years…well probably longer, but that’s when it was diagnosed. Been in the hospital 24 times…had ERCP’s…a stint…I take enzymes everytime I eat to help digest…had to stop all alcohol…and try not to eat anything too fatty. I never know when an attack is going to happen…one time right after I ate a bananna…hoping to find some advice…to maybe help someone else…and just connect with others that have been through this
I’ve had pancreatitis for about 4 years…well probably longer, but that’s when it was diagnosed. Been in the hospital 24 times…had ERCP’s…a stint…I take enzymes everytime I eat to help digest…had to stop all alcohol…and try not to eat anything too fatty. I never know when an attack is going to happen…one time right after I ate a bananna…hoping to find some advice…to maybe help someone else…and just connect with others that have been through this
son has chronic pancreatitis
Patti, one time my daughter looked at a bowl of cereal and an attack occured including vomitting. When I took her in to the doctor, he said that the brain can even cause this to happen. Something to do with the brain telling the pancreas to produce enzymes or something. She takes enzyme pills with each snack and at meal time and is on a 25 gram of fat per day diet.
Rodavan, how old is your son?
I work in the Medical Field and have had CP for the past 7 years.
As active as I can be, mom of 4…married to a wonderful guy. Full time Special Needs Para Ed in charge of my own room. Living with Pancreatitis- taking each day as it comes.
hello champ,
i was in an pain center in manhattan some yrs back, it was in hosp stay for 3 weeks. i did come away from it with a better knowledge of myself and others who suffered with pain. it gave me the tools to deal with the ups and downs of my illness, they did pain management , i went to daily therepy and class with other ppl who had chronic pain we learned from ech other, all in all it was a good experience which helped me along my journey with chronic pain. i hope all will be positive for ur child also. my prayers are with you .
nancy
I have had pancreatitis since I was 8. I am now living a happy healthy life usually pain free.
I’m 20, and I’ve Had Chronic Acute Pancreatitis, for the last 3 years.
Hi, I’m an ‘acute’ pancreatitis survivor. I had my 1st attack in 2001 & was in ICU for over a week; I have had probabaly 5 more attacks since then and now I have necreatis (sp?) in part of it. I’m only 44, but my last hospital stay - hopefully - I had a distant relative that visited me and told me there were 4 other people on my mom’s side of family that have pancreatitis. The doctors said alcohol tirggers them, or gall stones or scorpion bites, or just hereditary & 10% of the population is unaccounted for. I know the pain. I hate the dr’s & nurses treatment of me - even though I quit drinking, my blood levels returned normal & I tried to resume my life as I knew it - before the nectreatising, that is. I also found out I have a blood disorder, something about my anti-coagulation capacity & have to take blood thinners for that. Is there any connection? I was just told that that condition is hereditary also. Needless to say, my life is totally altered now. I have to stay on diet and get blood tested every two weeks. I am interested in this site because I like to hear how people overcome this, how it affects their lives & new recipes! I have to stay on a no/low fat diet & have lost so much weight that people comment and ex-boyfriend hates me because I kept getting sick. Boring, I know. But looking forward to hearing from someone to find out if this will ever go away?
Hi, I’m an ‘acute’ pancreatitis survivor. I had my 1st attack in 2001 & was in ICU for over a week; I have had probabaly 5 more attacks since then and now I have necreatis (sp?) in part of it. I’m only 44, but my last hospital stay - hopefully - I had a distant relative that visited me and told me there were 4 other people on my mom’s side of family that have pancreatitis. The doctors said alcohol tirggers them, or gall stones or scorpion bites, or just hereditary & 10% of the population is unaccounted for. I know the pain. I hate the dr’s & nurses treatment of me - even though I quit drinking, my blood levels returned normal & I tried to resume my life as I knew it - before the nectreatising, that is. I also found out I have a blood disorder, something about my anti-coagulation capacity & have to take blood thinners for that. Is there any connection? I was just told that that condition is hereditary also. Needless to say, my life is totally altered now. I have to stay on diet and get blood tested every two weeks. I am interested in this site because I like to hear how people overcome this, how it affects their lives & new recipes! I have to stay on a no/low fat diet & have lost so much weight that people comment and ex-boyfriend hates me because I kept getting sick. Boring, I know. But looking forward to hearing from someone to find out if this will ever go away?
I have suffered bouts of pancreatitis for the past 30 years. I was diagnosed with pancreatic cancer in 2005 and underwent a Whipple procedure. The tumor was found to be benign to the surprise of all involved. I continue to carry the diagnosis of chronic pancreatitus in the remaining parts of my pancreas, but have started a new business and am feeling optomistic about a future that was appearing to be lost. I would like to connect with others who are coping with pancreatic disease.
I am a 43yr old living with Chronic Pancreas desease, i was diag. with this 3 years ago, I also suffer from Chrosis of the Liver. I have 1 daughter and have been happily married for 19 years. I thank god everyday for the two joys in my life, they are finally starting to understand this illness and help as much as they can. I would like to find out if low platlets have anything to do with Chronic Pancreastits and or Liver desease. Looking for someone to talk with on a weekly basis. Thanks and hope to chat with some of you soon…
Barb
have been living with stomach upset, gastric reflux and pancreas pain for more than two years. cannot find any help for doctors.
Hello Mrs. Barb...
I would love to talk to you on a weekly or whatever basis. It is just helpful to actually have someone else understand the frustration and trauma we go through with this. My attacks are still unfounded.....no alcohol induced....no hereditary....they say I am an enigma...they just can't figure it out. I have have had ERCP's.....had a stint put in.....my ducts opened up.......and I still seem to get attacks every 3 or 4 months with no cause.......I am in NY....I am 51 and was diagnosed about 3 years ago.....but I know I had it before then....I just didn't go to the doc......I suffered through many attacks without knowing what they were....assumed bad gas......stomach ache...whatever.....I am anemic and take B-12 shots once a month.....I have vicodin and percoset for pain when needed. I have found these attacks do seem to worsen near my period......and also if I get stressed.
Let me know anything I can help you with......and thanks so much for being here and sharing.....have a good weekend......
Patti
HI ALL
IVE SUFFERED WITH PANCREATITUS FOR 5 YEARS NOW..WAS IN THE HOSPITAL 8 TIMES WITH IT...I FINALLY WENT TO A SPECIALIST AT MONTEFOIRE HOSPITAL IN PITTSBURGH PA...HE DID A SCOPE IN MY THROAT WITH A SONOGRAM ATTACHED TO IT...IT ACTUALLY DOES A SONOGRAM INSIDE YOUR PANCREAS TO FIND OUT IF THEIR ARE ANY STONES THAT GOT IN OR YOUR PANCREATIC DUCT WAS BLOCKED AND THEN IT SHOOTS DYE INTO THE DUCTS AND THE SONOGRAM WATCHES WHERE IT GOES AND IT THEIR ARE ANYOTHER BLOCKAGES ANYWHERE ELSE WHERE THE PAIN MAY BE COMING FROM....MY PANCREAS DUCT WAS BLOCKED...PUT A STINT IN AND HAVE BEEN PAIN FREE FOR 2 1/2 YEARS...BUT JUST THE LAST 2 MTHS I HAVE BEEN HAVING PAIN AGAIN....
ITS NOT AS BAD AS IN THE LAST 5 YEARS....THE GASTRO DOC SPECIALIST SAID THAT SUGAR AND SUGAR PRODUCTS..CORNSYRUPS, SPLENDA, ASPARATAME...ECT...SEEMS TO EFFECT PEOPLE WITH PANCREAS PROBLEMS...ALSO SMOKING, DRINKING ( I DONT DRINK) SPICY FOODS RED MEATS, FATTY FOODS...FRIED FOODS..
WELL I GAVE UP ALL SUGARS ABOUT 2 YEARS AGO...I DONT EAT ANYTHING WITH CORN IN IT (IM ALLERGIC TO CORN AND PORK) I WAS DOING EXCELLENT...BUT YOU KNOW WHAT , I HAD THIS TERRIBLE CRAVING FOR APPLE PIE WITH ICE CREAM...MADE SURE NOT CORN WAS IN IT OR SYRUPS...AND I INDULGED...1 HOUR LATER THE PAIN APPEARED AFTER 2 1/2 YEARS...SO I KNOW THAT SUGAR IS A BIG CULPRIT TO PANCREATIS...FOR OUR PANCREAS CONTROLS OUR BLOOD SUGARS...SO NOW IM BACK TO HAVING A CAT SCAN AGAIN...BUT HAVE FAITH IT WAS THE SUGAR THAT TRIGGERED IT...IM BACK TO NO SUGAR...BUT THAT DAY IT HAD TO BE EATEN IF YOU KNOW WHAT I MEAN....
I PRAY FOR ALL OF YOU...I KNOW THE PAIN AND WHAT IT IS LIKE TO LIVE WITH IT....KEEP ON LOOKING FOR A DIFFERENT SPECIALIST...THEY ARE ALL DIFFERENT AND HAVE DIFFERENT TECHNIQUES AND ITS WORTH THE TRY...
TALK TO YOU ALL SOON
TEWE AKA TERESA