ACC with almost all the symptoms

my baby girl has partial acc and she infact has all the prbs related to acc like GRED,low muscle tone,Sezisures.she is 4 months old now but her neck hasnt got the strength to support by herself and she turn blue few times a day on her sleep and its similar to sezisures.she had a surgery for GRED and that is ok with her now.Could anyone please tell me is the low muscle tone gonna harm her from sitting,standing and walking as she grows and anyone have similar issue of going blue in sleep.That happens in fraction of secs,cause of these prbs we have time only to run to hospital almost every day.Her EEG was normal.Kindly help…!!