Hello Im reaching out there for anybody that also may be from Australia. Ive been lucky enough to be invited to this site by D.Hughes and am very grateful but Im also desperate to find another family within Australia to share stories with. My son Truin is 7yrs old and has C-ACC and we would love to hear from someone that also has an ACC condition. Our health system seems to work differently here as do our therpy services. It seems to me America has a wider community for information on this topic and the support you find in these sites is amazing, but I do still live in hope to find somebody likewise here in Australia. Thanks for your time Joss.
