my name is brittany and im 17. i have been experiencing stomache pains for many years. it wasent until about 2 and a half years ago they found out i had endometriosis. i had a surgical procedure the day after christmas of last year and still have endrometriosis. im now recieving lupron depot shots and am hoping to get rid of this painful disorder. im hoping to find people with endometrisos like me to talk to about it with.
neck problems and headache (verebal artery) i would like to connect with someone that knows more about this as I just got dignoised with this and had alot of tests ordered like MRA , doppler us test for ocalsion on v.a. and bonescan but the doctor dont tell me much until I taake the test what are they looking for? I know my head hurts alot and the left side of my neck I have had 2 strokes maybe someone can help me understand?
Hello,
I have had Hashimoto’s Thyroiditis for about 12 years…though just diagnosed 8 years ago. I have been on Adrenal Cortex supplements from my naturopath, but could never get the doctors to do a cortisol test until now. Hmmm, very, very low cortisol. So now I need more tests to see what is going on.
Is the above a typo? I am living with fnhl. It has spread 2x since dx (4/05). I have not had treatment, am on W&W. Am very sick, depressed, tired, don’t sleep and I am sick of people telling me that, " You look fine!," or “You’ll be fine!”. Just had my tonsil out so it could be biopsied, it is lymphoma. Iam gr1/2, stage 4. want to talk to others in the same boat. Barbara D
My granddaughter has c-acc. Sheis 6yrs old she just graduated from kindergarten. ya ya!!!. Her problems are not as bad as we thought. Oh I forgot My name is Esther. My husband and I have guardianship of Bailey. She still can’t talk real good and her fine motor skills are not that good. I need all the input I can get for her so I can learn more about her.
Hi my name is suzan and im interested to know more as most times i feel so isolated on many different levels.It would be re-assuring to learn more or to meet people in the same situation so we as human beings can identify similiar feeelings and converse openly with out judgement and with out fear.
Kind Regard
Suzan x
I have just been diagnosed and want to find information resources and also ask questions of those who have more information on this than I do.
I have systemic Lupus
Wuts good, this is Nicole Miles I’m a 23yrs old African American Women who lives in Delaware. Unfortunately I have severe form of O.I. I use a power wheelchair to get me to and from, whether it’s to go to work, or to the mall basically where ever I travel I have to use my wheelchair at all times because I can not walk. I am joining this group to meet others that live a similar life as mine. I really need to speak with someone that can understand where I’m coming from, Far as being black with this disease, being young with this disease, dealing with this condition on a day to day basis PERIOD! And I believe that this I.O. community could help me make friends and assist with all those areas I just mention.
I have ATN, I’d like to learn more about the condition, potential treatments, and I’d like to talk with anyone else who has this problem.
I have lupus and I have been abandoned by my husband and I am in dire need of HELP!!
I have battled with it my entire life and an married to a bi-polar
I’d like to meet other people living with this condition.
Hi everyone, my name is peter I am 61 years old with one daughter aged 28 and it wasn’t until 4 years ago when I found out that I have the Aarskog Syndrome. We found out about it when one of my grandchildren was diagnosed with it. There is a lot of info for children with it, but hardly any for someone of my age! Can the Syndrome have any effect on Arthritis for instance, can it make it worse or any other elderly symptoms (if you know what I mean )
I was shocked to learn I have PPS…told I was cured in jr. high-1963.I’m having a hard time coming to accept it.Does it get worse at such a fast rate for every one or is it just me?I was diagnosed 8-05.Once I started getting my Soc. Sec. Dis. I became ineligible for Medicaid, and I don’t become eligible for Medicare til 5-08.I can’t afford to go to the polio dr. for treatment or help. I am declining rapidly.Anyone else in my situation?What do you do?Comments or advice-e-mail:Kori G at johnandkorig@yahoo.com. Thanks.
My drs say i have sjogrens syndrome would like to talk to others with this illness
I have raynauds, but am not sure what phenomenon is, I just changed rhuemies and found out for sure I do have fibro, MCTD, and some RA which may be part of the MCTD or lupus, I guess, they’re still testing me for that…
I have had Post PolioSyndrome for the past 30 years and I am still striving to fine a doctor who knows enough about it to be able to treat me effecively. When I have one of my attacks it can last as long as a month . I have pain on my whole right side and it feels like an elephant sitting on my chest. I am tired of doctors who as if i am depressed or try to pin my pain on something else. For a long time I didn’t even bother trying to go to a doctor because they think that I was crazy. Can anyone help me out please?
I was diagnosed with EoGastro about 3 years ago. Would always like new information and to talk to others who have the same illness. I also have lupus, fibro., CNS vasculitis, and EOG.
i have been dxd with it since 1986