My 16 year old daughter has RSD. I want to learn all that I can about this. She has had it for 4 years. Connect with anyone who has anything to say on the subject.
Hi, my name is Trina, I have RSD, I was diagnosed with it almost 7 yrs. ago. It started in my left elbow and has spread. I got it from falling out of an armored truck. I am currently waiting to go for my eval. for the spinal cord stim. I would greatly appreciate it if I would be accepted into your group. Thanks, Trina
I just had my second rotator cuff surgery on 6/06/2007. first one in 2001 worked great until adhesive archnoiditus in lower spine caused right leg to go out fell down 3/4 of a circular stair case. A the 3 concussions, and all other ankle 3rd degree sprain. I finally felt up to the surgery. They also had to repair the bicept tendon. The post surgery exercises are killing me right now but I know it will be worth. Everyone wish me and say a small prayer for me. thanks
hi. my name is maryann dempsey. i got my hand caught in a conveyer belt in febuary of '06. i cut my index finger off and crushed my left hand. two weeks later i had surgery on my hand, they put two pins in it and unattached my finger to reattach the nerves that i cut. five hours after the surgery i was in severe pain i could not stand air to touch my arm or hand, and i swelled so much that my skin cracked open. it turned green, purple and red. i told my doctor something was wrong, he said it was ok. two months later i went to a pain managment doctor and they said i had the worst case of rsd they had ever seen. i thought i was going to lose my arm, because the rsd was soo bad. and i still suffer with rsd and it has been a year and four months. and, it has spread to my right arm.
hi. my name is maryann dempsey. i got my hand caught in a conveyer belt in febuary of '06. i cut my index finger off and crushed my left hand. two weeks later i had surgery on my hand, they put two pins in it and unattached my finger to reattach the nerves that i cut. five hours after the surgery i was in severe pain i could not stand air to touch my arm or hand, and i swelled so much that my skin cracked open. it turned green, purple and red. i told my doctor something was wrong, he said it was ok. two months later i went to a pain managment doctor and they said i had the worst case of rsd they had ever seen. i thought i was going to lose my arm, because the rsd was soo bad. and i still suffer with rsd and it has been a year and four months. and, it has spread to my right arm.
I am 30 years old with fibromyalgia, UCTD dx and possible sjogren’s syndrome.
I am an RN and a Licensed Mental Health Clinician and I am teaching infectious diseases associated with substance abuse.
I am interested so that I may give my clients and patients someone they can talk to about their illness. I feel that people who have medical problems need support and who better to give support than another person who has the same problem.
I hope I can some answers so I may help my student, patients and clients.
Thank you and God Bless
Therese
Hi
I am 56 and have had vulvoydnia since March 1998. That was a very bad month for me and I remember it well! I have a very understanding and compassionate family doctor and she was a very big help sending me to different specialists to try and find out what was wrong with me. I have developed chronic pain syndrome with this condition, degenatitve disc disease, insomnia and osteoarthritis. I’m not sure what I want from this forum except to talk to people that know what I am going through and understand.
Thanks for listening
Been there and paying for it!
I have HCV and need support. I have chronic pain I also have RA, pos CMV, EPV and kidney stones. Do other people use Lortab to help with the pain of their Hepatitis and Rheumatoid arthritis
Hi I’m Barry I live in the south Cost of the UK nun less “Brightonâ€Â,
I was diagnosed when I was 38 with 47xxy & Osteoporoses & some years later diagnosed with Gender Dysphoria & paraphilia i.e. 1, I get confused to witch gender I’m suppose to be lol & 2 I cross-dress & love every mint of it hasten to say I’m a very open minded person & in no way am I afraid to discuses anyone of the issues surround my life as I firmly believe if you are to overcome a problem you must face your daemons head on or they will drag you down with them,
Yes we all have our low moments & sometimes feel the worst for wear but we all got one thing in common we are human for the better part thank god & apart from being human we have something most men dote we have the qualities of both genders witch is a good thing, so as they say always look on the bright side of life (Monty python) o’ & I’m as mad as they are witch is a good thing to,
Anyway some people wont to talk about xxy & all its hidden secrets witch is good for haw ells are we as xxy or variant suppose to find out these things now that’s all good sed & dun if you live in another country but here in the UK? Well need I say anymore NHS free medical cear oom yes as long as you dote ask to many questions & do as your told ok to say I have had a bad time of it with the NHS is a understatement but I’m shour some of use xxy’s get treated differently all depends on the post code to where you live I suppose do I sound a tad bitter with the NHS a big YES would cover it & let down by the system but hay there only human ha, ha lol,
Anyway save the day I’m now 46 with a flat spear tier romanticism in my lower limbs splendid pain most days DVT in my lower legs more in the left, live on my own manly cos no woman is brave anoth to take me on, what can I say life stinks but at lest I still got my freedom anyway I shunt boor you to much cos all you need to do is ask… Barry.
diagnosed with Epstein Barr, but have had chronic fatique and pain for so long. Getting worse. Want some answers.
I have several diagnoses including EMS and FM.
i have brain cancer had a tumor removed august 8th 2005 it is a astrocytomas grade 3 i have had 4 brain surgerys so far but my doctor said i will come ack soon. my first operation when they opened my head my brain had shifted 18 mm. to the left and when they touched the tumor it ppped
I am single parent of 2 teens trying to attend college while dealing with alot of stressors in life. I have overcome alot of depression and anxiety praise God but seems the extreme amount of stress lately has brought about alot of physical and emotional pain and exhaustion. Just looking for some moral support both to give and recieve others in same or similiar situations…It seems sometimes when you look for christian support you get judged instead because most ppl dont see depression as an actual diagnosis…God Bless all
I have been told that I have idopathic edema a few years back! I am also in the mists of being diagnoised with a rare nerve disease but the Neurologist are having a contravorersy over the disease and calling it what they want but the bottom line is they do not want to treat the symptoms until they actually put the name with me!!! Barbara
injured shoulder3-25-07-had surgery 5-11-07-still hurts very badly-when will pain get better-how long does this whole process take,physical therapy and pain-getting real tired of it all now-HELP!!!
i have friedrich ataxia
Hi, I’m Tony, and I had a motorcycle accident on 29th July '05 where I broke my back and my neck and shunted my spinal cord leaving me with BSS. I don’t seem to have as bad symptoms as some but worse than others so I guess I’m somewhere in the middle. It took a while to learn to walk again but I now play 18 holes of golf with a golf buggy to help me get around, and I enjoy my life to the fullest I can.