Hey, Lup, how 'ya doing? I don't know about this either and I don't see my doctor again 'till August 2nd. I do want him to look it over though. I made a copy of the PDF version of the article for him to read.
Right now, I'm taking some of the usual FMS medications. Neurontin (a pain and (I think) anti-seizure med for Restless Legs), Amitriptyline (to help me sleep), Synthroid (for my Hypothyroidism), Darvacet (for breakthrough pain) and all the prescription IBU's I can stand, but the worst part -- the part I can't stand -- is the 3-day patch I have to wear all day, every day, for maybe 6 or 7 years now. It's the strongest strength, too. I never used to even take aspirin for a headache, but now I'm on so much crap, I don't know if that makes me an addict now or what. Not that this medication would be any different really. I mean, it's easier to wear a patch and not have to worry about it being "time to take a pill", but it always seems that the patch is a tad too strong on the first day and too weak on the third, so would pills be any better? Any stronger?
I don't know ANYthing about this new 'FMS' drug, but then again, ANYthing's better than NOthing, right? If nothing else, it's a start. Take a look at the winning videos for commercials for FMS and CFS I posted in 'Our FMS Discussion' group forum 'Winners of the P.A.N.D.O.R.A. 2007 International Advocacy Video Contest'. According to 'Our FMS Discussion' group's forum page, it looks as though no one's even looked at the thread, not to mention reply to it. I can't be certain what I see is even accurate. I've had to send two Support Tickets to CarePlace because, on one of them, I had to tell them that I wasn't able to start ANY new topics and that applied to ANY forum in our group or ANY others! Did anyone else have that problem? Not that anyone was posting or replying, but that's not the point.
Ever since CarePlace 'updated' the site Friday, I've noticed a LOT of problems, not just with posting, but with our group picture, duplicate 'dummy' groups that appear to be started by our group but yet, I'm not able to delete them and a bunch of other stuff like problems with the 'Knowledge' tab, too. The last ticket I wrote to Support I told them that I was too ill to fix my OWN stuff, let alone try to figure out what's wrong here -- especially when the site won't LET me fix anything!! I'm not yelling at you, Lupy, even though it may appear that way. LOL LOL I'm just so frustrated with trying to make a good group that we all can enjoy and to take one more thing AWAY that we don't have to worry about, you know? LOL
Anywho. I've ranted now and, as usual, went 'off topic'. LOL I just hope that this new drug does something for somebody or it'll be just another disappointment. God knows we DON'T need another one of those!!!! If anyone knows anything about this drug, I'd sure appreciate it if you'd reply and tell all of us about it, OK? Side effects, like Lupy mentioned or strengths (if they have different levels of dosage) or anything you may have heard about someone using it, whatever, OK? Thanks.........
PS: Speaking of 'kinks' in the new updated CarePlace, take a look at GG's reply in this forum in the 'Fibromyalgia Member Introductions' thread. Look at page two, on May 17th, GG wrote about FMS and another particular illness. FMS shows up as a 'Parent' and a 'Child' illness and the other illness she mentions several times shows up in FOURS! I don't know WHAT that could mean. The 'Knowledge' or the old 'Learn' tab mentions 'Parent' illnesses as well as 'Child' illnesses. I never knew FMS to be a 'Parent' illness to itself, so I'm really confused! Lupus, on the other hand, appears to be a 'Child', 'Parent', 'Grandparent' and 'Great Grandparent' to itself! Does this seem right? Sorry, GG. I didn't mean to pick on your post. You just happened to have a great example of what I was ranting about above! LOL So what happened? Hmmm.....