Genetics

Regarding grilled food and gluten: There are two possibilities for getting gluten in grilled food, other than the usual ones. First, some charcoal briquettes are made with wheat as a binder. I switched to solid wood charcoal to avoid wheat and other peculiar things that can go into briquettes. The brand I use is from Whole Foods; it’s cheaper than the charcoal I find elsewhere.

Second, if the grill has been used to cook non-GF food, such as buns, you could suffer from cross-contamination. You can buy a replacement grill, which is fairly inexpensive for most grills. Or, you can use a pre-made aluminum liner; I can’t think what they’re called. Or, you can just put a piece of aluminum foil over the grill and cut slits through it.

Watch out for barbeque sauces. They very often contain gluten. It may be in the form of teriyaki sauce.

I want to say one more thing on grilling as a source of gluten. I don’t know for sure that using conventional, wheat-containing briquettes would cause a problem. Some manufacturers have said that the gluten is burned away, and that the small amount that would be in smoke couldn’t hurt a person, anyway. That may be true, but I’ve decided not to take the chance – especially since I learned how much better food cooked with solid charcoal chunks tastes. If you use a “chimney” to get the fire going, you won’t have to use starter fluid. Some people say that being around a briquette-based fire makes them ill, even if they don’t eat anything.

Saz’s BBQ sauce is gluten free and tastes great!

-----Original Message-----
From: cornlily [mailto:celiac-cpt3156@lists.careplace.com]
Sent: Wednesday, May 23, 2007 12:01 PM
To: marieann@phoneserv.com
Subject: Re: [celiac] Genetics

Cattleman’s Sauce is gluten free and delicious
----- Original Message -----
From: “cornlily” celiac-cpt3156@lists.careplace.com
To: sleepy.jeanne@comcast.net
Sent: Wednesday, May 23, 2007 1:00 PM
Subject: Re: [celiac] Genetics

Thanks!

-----Original Message-----
From: cornlily [mailto:celiac-cpt3156@lists.careplace.com]
Sent: Wednesday, May 23, 2007 2:01 PM
To: marieann@phoneserv.com
Subject: Re: [celiac] Genetics

My nutritionist, a celiac specialist and celiac herself, told me that gluten
is sometimes used as part of the artificial color chemistry mix - why, I
don’t know…but I’m going to call her and clarify this today since it seems
others haven’t heard of this. I want to make sure I have the right
information
----- Original Message -----
From: “cornlily” celiac-cpt3156@lists.careplace.com
To: sleepy.jeanne@comcast.net
Sent: Wednesday, May 23, 2007 6:00 PM
Subject: Re: [celiac] Genetics

HI Cornlily,
Im new to Careplace and hope Im doing this right. You said you have an
autoimmune liver disease. I have Primary Biliary Cirrhosis and was wondering
if that is what you have.

Bonnie

And so, as one smart bear once said…“If you live to be a hundred,
I want to live to be a hundred minus one day, so I never have to live
without you.”

  • Winnie the Pooh

----- Original Message -----
From: “cornlily” celiac-cpt3156@lists.careplace.com
To: bonpurr@metrocast.net
Sent: Saturday, May 19, 2007 9:00 AM
Subject: Re: [celiac] Genetics

Bonnie, you ask if I have PBC. No, I have autoimmune hepatitis (AIH). I was successfully treated for interstitial cystitis, which is another autoimmune disease, according to most sources. My daughter is on disability from chronic fatigue syndrome.

AIH and PBC are close cousins, of course. I was diagnosed seven years ago; I had no idea I was sick in any way, just happened to be in the doctor’s office for a routine visit. I learned that my liver was in very bad shape, although I hadn’t noticed the symptoms. I was treated immediately and aggressively, and I’m doing okay now. Not great, but okay. Few demands are placed on me, so I manage and I enjoy my quiet days.

Bonnie, do you belong to a specific liver-related group? What sort of treatment are you getting for PBC?

LinkedIn

a,

I’d like to add you to my professional network on LinkedIn.

-Anne

Learn more:
https://www.linkedin.com/e/isd/339770027/hwEBidck/


What is LinkedIn?

Maintain and develop your professional network:
Like Anne Coppola, you can stay connected to past and present colleagues and classmates who you respect.


© 2008, LinkedIn Corporation

Hi Cornlily,
I found the PBC Digest through Yahoo Groups or PBCers website, pbcers.org.
I was put on Urso when I was first diagnosed and then switched to Urso Forte when that came out. My Gastro for some reason just started me on a new med, Colchicine. I take Zyrtec for allergies, but find I get the “liver itch” if I stop taking it, so I take that every day all year.
Bonnie NH