Multiple Sclerosis Member Introductions

#32

i have just been to the doctors where i have felt unwell for over a week with headaches and numbness and tingling in my hands and face we talked and i said what a wonderful place the internet was for finding out things, and on the other hand how it can be a place to shock you, he asked what i thought i had, (who was the doctor here) i said M S he agreed, i havent had tests yet but feel so alone and scared,

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#33

i am worried i may have symptons of m.s

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#34

I have just been diagnosed and am aged 57.

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#35

im a 22 year old female who has a high possiblilty of multiple sclerosis and scared dont know what im dealing with.

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#36

i am 39 years of age and my wife who suffers from MS is 34, she has two aunts one in her last stages and the other in her middle stage, respectfully. she also had a uncle who died from the disease. the doctors told her she would want to be alone once the disease starrs progressing, that she woukld feel as if she does love me, her children or anyone who is close to her, trying to help her cope with the disease. she understood at the time and said she would not let that happen. Now, even though she tells me i did nothing wrong, that i am a good husband and provider, she doesn’t love me anymore and wants to be alone, to be able to do the things she wants, even if they hurt me or the family. she feels that she will die before me and she wants to do these things until the day she dies if need be. she always says it’s not anything you do, it’s me. Why do she not remember or even better heed what the doctors told her and resist those feelings. Though i did not tell her, my biological grandmother told my that my wife told her that she does not love me anymore, that she will leave me when our child of 13 years of age gets a little older.

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#37

hello,i need to know every thing about ms.

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#38

Actually I do not have MS ~ but it is the closest to the things that are listed . I have Lambert-Eaton Myasthenic Sydrome ~ which is rather rare but close to Myasthenia Gravis in that the problem is that the muscles and the nerves stop talking to each other.

I am looking for information and support and hope to provide the same.

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#39

husband with ms is now in nursing home because of disease

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#40

In the beginning, I want to introduce myself: I’m a doctor of medicine for about 20 years now and very interested in Neurology and Orthopedics. Since 5 years I work as an assistant medical director in a rehabilitation center in Germany.

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#41

where do i start mmmmm i guess i just have tons of questions,even though ms has blessed me for ten years i still dont know it all,ialso have a family 2preteen girls ugh,a college kid and my biggest kid of all,my husband,oh yea and a job,so im pretty busy spite having ms,look foward to chating

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#42

Have M S…want to connect with others who’ve tried LDN…to no avail…maybe we can search for something else in common and find what might help us ! !

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#43

I have MS, biggest problem, fatigue on disablity

My husband is a diagnost Narcisst

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#44

single mom with 6year adhd son living alone in NC. Moving to mountains of NC this summer to get away from heat. Age 45. On SSDI. Have 2 Masters degrees. Want to apply and persue a doctoral degree in a Technology field. Worried if I can do it. I have a progressive form of MS in the sense of progressive loss of diaphragm, intestinal stomach weakness, digestion weakness, swallowing weakness, core trunk stability weakness and so on.

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#45

Though they say short term memory is sometimes erratic for those who suffer from MS, my wife is working on her bachelors in criminal justice So far she is doing find, so hang in there. I am reading your emails from top to bottom meaning i’m reading the last first and i guess the first last, that is why my responses are coming to you this way.

knightshotter ms-cpt2191@lists.careplace.com wrote:

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#46

I was diagnosed with RR MS in June '00, started on copaxone right away, added provigil within the next year. I’m still active, but usually take an afternoon catnap. I just want to meet and talk to other MSers.

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#47

I am a SURVIVOR of Central Pontine Myelinolysis, an acquired toxic demyelination disorder said to be a neuromuscular disease of the central nervous system. This disease came to the forefront in 1959 and has continuously been very quietly withheld from the publc world wide. Recently I’ve founded the “CPM Awareness Foundation.” Along with my own chronic issues, I have found my best therapy in doing my best assisting other CPM victims or their families as most CPM victims that live or in need of help in many areas. Now as a CPM survivor, layman advocate and founder I’ve been involved in many scenerios bringing “CPM Awareness” to many Government Institutes along with many influential organizations.

It is stated in all imformation that there is no cure currently available which tends to be both true and false. Central Pontine Mylinolysis is what is called an Iatrogenic disease meaning it is acquired by, “Error of Treatment.”

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#48

Hi, I’m kate, I have MS,l live with an unsupportive, alcholic spouse, have 5 kids, and am looking to find support, and give it as well…blessings, kate

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#49

I was diagnosed at the age of 49 after a bad episode put me into the hospital. I have been fortunate to have a mild case. I am now going on 55. My symptoms are tolerable. I can still do all necessary daily functions of life. I am interested in people diagnosed later in life and how their health was before.

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#51

My sister was diagnosed with MS in July of 2010 and I am trying to learn as much about it as I can to help her deal with her symptoms.

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pinned #52
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