Noonan syndrome Member Introductions

#44

My husband was just diagnosed with NS this year 2008 we had a son and it was thru him that we found out. He is 30yrs now and he has had 2-open heart surgeries and 1-stent placed back in 2006.

He is a very joyful person and when we found out or him i should say he was like wow i finally know who i really am…LOL

He has JRA(arthritis really bad in his ankles and knees due to NS because of his short statue) he has never taken GH of any kind.

He is very skinny though(wish i was J/K)very high metabolism. Don’t let NS scare you.It makes you very different and special. My husband says that GOD is just working on his testimony because you never know your storm is someone else’s hope.
Hang in there bud!!! I’ll be praying for you…

Zayra
wife to Devaran-NS-30yrs and mom to Elijah-NS-5mths

Wait on the Lord, and he shall strength thine heart.
Psalm 27:14

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#46

Hi my name is Val my brother is 18 years old with NS and DWS. I want to learn more about NS and if anyone else has experience with these two syndromes 

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pinned #48
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