Retroperitoneal Fibrosis Member Introductions

Retroperitoneal Fibrosis
#61

Hello all,

My name is Joan and I have had RF since 2004, or shall I say that is when it
showed up in an open biopsy.

So far so good, with surgeries, etc. If any one of you would like to give a
call or write to my e-mail…
Diggy86@aol.com (mailto:Diggy86@aol.com) I would love to talk. I have
unlimited long distance and belong to both of the RF sites and have made
many friends. I am usually here. My number is 239-540-1839.

I must tell you that I got seven posts today and they were pretty difficult
to make out what is actually going on.

Love and Prayers,
Joan & Rusty
Cape Coral, FL

By the way, my doctors are in Tampa and St. Petersberg and after what I went
through here in the Ft. Myers area and Miami, I can assure I have taken
steps to find the best in the area. Hope to talk to you soon.

************************************** See what’s new at http://www.aol.com

#62

Trevor,

You might want to write to me directly at RF@spaldingoffice.com
or at pmorgan7@sbcglobal.net.

Put
Connecticut
USA

#63

hi my name is trevor from uk. Iam reading your replys and most of you are taking tamoxifen .i have been taking aziathaprine 100mg and 7.5mg prednisalone for past 3 years touch wood keeping well.Was diagnosed in 2000 after trying other drugs to no avail and lost use of right kidney in2004.

#64

hello I’m Leyla from Turkey. I’m also a patient of retroperitoneal fibrosis disease. I have only one nephritic but my other organs are in good health now. MY doctors started to use 12 mg prednozol daily to cure my fibrosis. I want to learn the details using of mangosten’s juice for this disease from “artistwithadog”. I will be very happy if you write me as soon as possible. thanks

#65

You might want to write to me directly at RF@spaldingoffice.com
or at pmorgan7@sbcglobal.net.

Put
Connecticut
USA

#66

Can you plese take me off your mailing list, Bob died May 30th of a
pulmonary embolism.
----- Original Message -----
From: “putt” rpf-cpt2326@lists.careplace.com
To: cdjkids@qwest.net
Sent: Monday, October 27, 2008 7:35 AM
Subject: Re: [rpf] Retroperitoneal Fibrosis Member Introductions

#67

Sally,

I am very sorry to hear of your loss.

I have absolutely no control over where these posts are sent. To be removed from these mailings you need to go to the CarePlace site, log in and make the changes yourself.

I’ll also send a note to the CarePlace admin to see if they can do it for you.

Put

#68

thank you
----- Original Message -----
From: “putt” rpf-cpt2326@lists.careplace.com
To: cdjkids@qwest.net
Sent: Thursday, October 30, 2008 9:28 AM
Subject: Re: [rpf] Retroperitoneal Fibrosis Member Introductions

#69

hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.

#70