Jackie,
Go to google, type in Medifocus.com. At the top of the page you can search by specialty (gastroenterology) and condition ( chronic pancreatitis). That should get you there.
Vonnie
I did all of that but was not able to get to Chronic pancreatitis- it’s a scroll down menu- will try again- Thanks
Oh- okay- thanks a lot 
What does everyone think about gathering together, maybe on a conference call, to discuss our goals wrt treatment and going after research monies to help those of us suffering? It is hard to believe that a disease that was first discovered 200 years ago has had such little advancement in treatment. If it truly has a genetic component, maybe screening is a step in the right direction. I have had 6 CPB and 1 CPN in the past 13 months but there is controversary as to how many of these blocks can be done. It is my only saving grace where pain in concerned. Each time Doc K goes in, he sees more calcifications. Eventually the pancreas will eat itself and the pain stops, which is a good thing but then there are so many other drawbacks, such as uncontrolled diabetes. How long does this take? At what point do I look for other alternatives for pain management? Narcs are an area that I do not want to continue in due to the fact that one needs more and more to keep comfortable. I read the post from Lisa about radio frequency ablation but no one in my area has explored that yet. We need more pancreatic centers throughout the country who can best treat our condition.
T
I would be happy to participate. Let me know how I can help.
Just let me know what I could do…I’m in for helping any way possible! Ever since dealing with this condition, I have been much more observant of health care and the sick. Please let me know what we can do!