Stroke Member Introductions


MD, MPH Senior Consultant Internal Medicine & Gastroenterology & Hepatology. Have expersience from several rare diseases



My doctor discussed this the other day and I want to learn all I can concernig same, as I may have it.



my husband has esphogus cancer and 3 other area in his body , he throws up clear yucky goo and cant get liuids down. does anyone have suggestions? he also had a brain stem stroke and had a 5 bypass.



Interested in new forms of treatments in physical therapy.



I have had breast cancer 2 times now and like to talk to other women who also have or had BC



I have multiple lipomas. I need help to reduce it.



I want to learn more about this cause nobody knows any thing about. All I know is that ever one in the world has had the hystoplasmosis (thats what you get before you get the life threatin scarring that i have) and maybe 20 people get the fibrosinig mediastininitis!!! Can you imagin 300billion people get the hystoplasmosis but maybe 20 people get this rare fatel disease Fibrising Mediastinintis!! I would like to know of any body else who has had it or know some some body who has had it (REST IN PEACE)!!!



My 16 year old daughter has RSD. I want to learn all that I can about this. She has had it for 4 years. Connect with anyone who has anything to say on the subject.



I’m a 37 year old mom with AU. have had alopecia since age 10. I’m here to give encouragement to others with the same or similar circumstances.



I was diagnosed with Lupus many years ago, and because of it, my health had been continuing to decline. I’ve had cancer twice, numerous surgeries and infections–in and out of the hospital constantly. A friend of mine encouraged me to try an organic powder he and his wife took that helped them. I have been using these Reliv products for about 4 months now, and have to say they really have made a big difference in my health. After the first week, I noticed my sinus infections had completely cleared up. That is something I had dealt with all my life and just expected to live with. I was allergic to everything before, it seemed. Then after about 1 1/2 months, I noticed I could get out of my car and the chair without the usual struggles because of stiffness from arthritis in my legs. Something I’ve also dealt with for some years. All my shooting pain is also gone from my joints, including hands. Most recently I’ve noticed my chronic bronchitis I’ve had for the past 3 years has been clearing up and the urinary tract infections. I had previously been going to the doctor at one point about every other week. I am continuing to take the Reliv products and hoping for continued improvement in my chronic bronchitis and urinary tract infections, which I’m told will come. On a side note benefit I never expected–I noticed too now that the cellulite in my legs I’ve had forever has been disappearing. That is an extra benefit I hadn’t even hoped for as I’d heard nothing really ever works except expensive massage machines and creams which doctors laugh at anyway. I also recently started trying another one of their Reliv products called, ReversAge, which I’ve noticed like some have told me that their hair started coming in it’s natural color again instead of gray. I’m told it has many other benefits. I wasn’t looking for younger hair, but am looking forward to some of the other stated benefits of memory improvement, reverse of damaged cells, and improved brain function. My father has a rare brain disease, so my brother and I started him on the Reliv products, and we’ve been told by doctors that they have been noticing an improvement already in his brain function. We feel he is near the end of this disease, so this was great news for us, even if it is just to give dad a little better quality of life at this point. Since then, I’ve been hearing of others who have had Parkinson’s, Alzheimer’s, and MS that these products have greatly helped.

If anyone has further suggestions for urinary tract infections and chronic bronchitis, I am always open to more information.



I have Factor V Leiden, along with some autoimmunites… I have two children that I love to brag about, lol! I do suffer from many different symptoms and just am looking for others as well for support and to help answer some questions I may have :slight_smile: Thanks.






my son has this



I recently injured my arm, can’t move my right arm up-ward and side ways as I used to be able too. still have pain not as severe as it 1st happened two week ago, wondering what is the nature of the problem in my upper arm.



Hello, I have a Great-Nephew who is waiting for double lung transplant. He is 36 years old and has Cystic Fibrosis.
I love him very much and am interesting to know all that I can about his disease. He also has Diabetes.



Hello friends. 9/15/06

I’m sure you received a packet from the National Stroke Association of America, listing those who wish to become penpals and reach out to those who suffered a stroke or has experienced a TBI event.

I’m not an official spokesperson of the N.S.A.A. But as a stroke survivor at the age of 37 (I had my “event” when I was 35) with nothing to do, I pretty much though I would take it upon myself to get this ball rolling and reach out to anyone that I can.

Now, I don’t claim that I’ve conquered a stroke. There are no, seven steps to a speedy recovery on my part. So please don’t send your checks to me. All I can offer is my philosophy. That’s it. My pitch is what you are reading now.

For those of you familiar with the N.S.T.A Web site, there is a section where you can read on the latest statistics. So, the latest figures show that there are 5.5 million people in the US who will suffer and survive a stroke this year. If you divide that by 50, that’s 1.1 million people, per state. My dearest friends, what this means that on any given day, in any state, there will be 30 stroke survivors to add to our exclusive but crowded group.

When I had my stroke Back on June 10th, 2005. I spent days in ICU. I spent six months in rehab just to get me fit enough to go home. All that time I asked myself, “okay, I had a stroke, now what?” What is my purpose? Am I to be a burden to someone for the next 35 years? Why did you, leave me like this?

A couple of realizations I made. First, I will never ever become a burden to anyone. It’s one of the many mantras’ I say. And in time, I learned that asking for help is not becoming a burden. And most importantly, I think the reason why I am here, is for the 30. I think we can say we all were once were bipeds just like anyone else. But it was that one clot, or that spike in the blood pressure that changed us from everyday people. So, I am here for the 30, who will wake up and realize certain limbs won’t work, and tries as they might, the words cannot form. I am here for those that will wake up and say, “okay, I had a stroke, now what?”

With great humility, I submit that I will do my best to greet you as the stroke guru, for lack of a better phrase, and say, “yes, right now, things may look bleak, but in time, you can stand where I am standing now. There are many others waiting to help bring you back to the speed of life.”

Enough pontificating. In time, you’ll see I have a very roundabout way of getting to the point. I invite all of you to write back, share your thoughts, provide suggestions or vent your frustrations. If you know someone who might need this, by all means, I invite sharing. I know that I don’t have all the answers, but I hope I can point you in the right direction.

With that, I thank you very much for your time, for inviting me into your home, and allowing me to join a very exclusive group of the most extraordinary people.

John trani- Brooklyn, NY
37, stroke survivor and perpetual work in progress.



i have depression for a long time i am 39 and i live in nc, i have 2 kids, married 15 yrs i have heart replacement, metal vavle, 2 stroke, hearing loss



I am age 65 and suffered a cerebullar stroke on 9/12/2004. I have regained but but there are still damages that have not resolved themselves. I am luck in this respect not to be much worse off than many iwth this type of CVA.



hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.


pinned #46