I was almost initially diagnosed with Wegner’s granulomatosis instead of cryoglobulinemia. Once cryoglobulins were detected my diagnosis became cryoglobulinemia. Tests showed that I was negative for hepatitis C, so my diagnosis is now essential cryoglobulinemia.
not only is all that a factor but there was no lung involvement and no granulomas were found in either my lungs or kidneys…the presentation was not typical of Wegner’s, so more evidence was needed… eventually cryoglobulins turned up in a blood test.
My reason for posting this is that many of these autoimmune disorders share similar symptoms and it can make a clear diagnosis initially difficult to get. As a result some people with cryo are not diagosed with the condition until long after symptoms first appear.
Me