What kind of doctor helps the most?

Dercum's Disease
#21

My grandfather died of lung cancer in my living room. Hospice brought in a bed, and we gave him a bell.

If stress triggers DD… My father, aunt, and the rest of my grandparents. They all died so close to another…

This was all while I was in a tech school, going to college, etc.

I lived with my folks through it… Tried to help them through it… Had months at a time that I rarely slept or ate.

Dropped from 235lbs to 190lbs in 3 months… First actual painful lumps appeared shortly after eating again…

I couldn’t get any help. Stupid Dr’s said it is an emotional thing- the physical pain was emotional pain.

B.S.

Anywho…

I think I’ve decided to seek out a pain management doctor. I realize now why this DD upsets me so… I can slow my heartbeat… I discovered I can hold my breath for almost 2 minutes… I can wiggle my ears independent of each other… Same thing with my nostrils, eyes, scalp, eyebrows, etc. Point is, I’m a control freak to my body… DD has it’s own agenda…

The pain management DVD I saw last night gave me terrific insight on how to control it (pain).

I slept 10 hours last night! I got up ONCE!!! Yay!

Meditation helps. Visialising helps.

I dare say they shrunk from it. They are back today, but much less tender/hard.

Yesterday I contacted a sheriff and began steps to get totally away from the toxicity of my mother. That also helps.

I hope I can return the strength you share with me.

#22

Thank-you Sylvia,
My mom did have a DNR, but she still suffered horribly for quite some time. It sounds like your mom went through as bad or worse. I am so sorry you have to carry those memories with you.

Hugs and spoons,

Pamela

#23

Suri, I’m so sorry about your mom. There is nothing harder than losing your mother because no one in the world loves you the way your mother does. When I read your post this morning I had to get up and walk away to keep from crying. My mom has been gone for a long time now, but the wound still feels fresh when I talk about it. And now we are about to lose our fathers as well. I feel your pain.

Hugs and spoons,

Pamela

#24

Suri…It sounds like you had a very loving relationship with your Mom. The relationship that we have with our mothers is the most intense and complicated one in life. It is so sweet to watch the joy my daughter is experiencing with her daughter. The death of your mother is as intense as the birth of your children. I am glad to have you as friends who understand. Hugs, Grandma Sylvia