13 weeks pregnant and my baby has anencephaly

Anencephaly
#1

Hi! I have endured 5 miscarriages over the past 4 years and have two healthy daughters. I am 13 weeks pregnant and just found out the devastating news that our baby has anencephaly (no skull bone and brain tissue floating in the amniotic fluid). I have a termination booked for 3 days time but unsure if this is the right decision.

I am a mess and cannot stop crying. I would like to hear from others in similar situations and how they came to make their decision. Also, any coping strategies to get through this horrible time?

Thank you.

#2

hey there im all new at this but last month on the 17th on august i find out that my little girl has anencephaly and i no its had trust me but i did all my reseach and spoke to my doctors and the thing is there is noting we can do, me and my other half made the decision to terminat , if you choces to go full term ur baby could past away in ur belly or die up to a 10mins after giving birth

IAM SO SORRY TO HEAR THE NEWS I NO ITS HARD ;(

#3

I am so sorry to hear about your precious baby. I have been in your shoes and it’s an awful feeling! I wish there was something magical I could tell you to help make everything better but there’s not. The best advice I have is to tell you to enjoy your baby at this moment inside you. There is no right decision. The only thing that helps is time. I wanted to carry to full term and try to donate my angels organs but found that I couldn’t. I terminated my pregnancy at 24 weeks and it was such a hard decision. Just rely on the ones you love to help you through. I also found that becoming stronger in my faith has helped. I wish you the best!

Crystal

Sent from my iPhone

#4

I am SO sorry that you are experiencing this- it’s truly tormenting and so =
SAD- I wouldn’t wish this on anyone! I too struggled with what to do- what =
a nightmare debating God’s will or ours… we went through with the inducti=
on at 20weeks- it was the right thing- I couldn’t fathom having him move in=
side of me until the end of the preg, just becoming more attached to him…=
I can’t tell you if it’s the right decision for you, but it was for us and=
I have no regrets about it, just sadness, yet it’s a sadness I was able to=
store away instead of being so raw and upfront all the time. I came upon a=
great book about making this decision- there aren’t many out there at all,=
so I felt fortunate to find this and it made me feel better abt my decisio=
n too… I just went to look for it and can’t find it… try googling induc=
ed pregnancies and deciding what to do- I think that’s how I found it…I’=
m SO sorry you’re going through this- I wouldn’t wish this on
anyone… there’s just no word for a parent losing their baby and no one r=
eally gets the pain but one who has been down that road… keep your faith-=
it was my rock…

Kelly Niergarth
=A0
"The most important thing in communication is to hear what isn’t being said=
." -Peter F. Drucker
=A0

— On Sat, 9/19/09, gracesmum <anencephaly-fft-12037@lists.fireflyhealth.o=
rg> wrote:

From: gracesmum anencephaly-fft-12037@lists.fireflyhealth.org
Subject: [anencephaly] 13 weeks pregnant and my baby has anencephaly
To: unahkorn@yahoo.com
Date: Saturday, September 19, 2009, 2:23 PM