I have had a preliminary diagnosis of achalasia and I need to talk to people who have experience!
I have Achalasia.
I just was recently diagnosed with achalasia. Looking for what I am in store for.
I have lived with Achalasia for 20yrs and because it is so rare, itās good to have others to interact with
Iāve had achalasia since about 2001. Been living with it without any of the standard treatments apart from a balloon dilation early on that wore off in a week.
I was diagnosed with Achalasia almost 15 years ago after about 15 years of living with it and not knowing what was going on. I had surgery after being diagnosed and have lived much more comfortably since then. My interest in this group is to not feel so alone in this.
I would just like to read a little bit from patiences condision.
My name is Lisbeth Little and I have been diagnosed with A since May 2003. Itās nice to have friends who understand on a personal basis what its like. Itās ironically reassuring the know youāre not alone in living with A.
Hello,
I belong to the achalasia yahoo support group. My daughter, Tia has achalasia. She was diagnosed and had surgery in November 2006. She was only 9 years old at the time. She turned 10 in April.
David Hughes suggested everyone stop by this site to check it out. So I finally have a quick minute to do so.
Cathy
I was diagnosed with achalasia in August 2006 had an open myotomy in September 2006
9 months on I am doing well.
I was diagnosed with Achalasia over 5 years ago, and had a Hellerās myotomy shortly after being diagnosed. My symptoms progressed very quickly and I was completely unable to ingest foods or liquids when I had the surgery. The surgery was successful, but I have had a MAJOR increase in the number of painful esophageal spasms and would like feedback from others with this rare disease.
Hi! My name is Jim, Iāve been treated for achalasia for 20+ years. Numerous dilitations both before and after myotomy and like most looking for that magic bullet. Ha!
Hello, my name is Martin and I am 28. I live in Slovakia. I was diagnosed with achalasia four months ago, although I had lived with the condition for several year (not sure how many as the onset was gradual). I had a Heller myotomy with partial (Toupet) fundoplication performed on me in the Czech Republic two months ago. I was the surgeonās 104th achalasia patient. So far I feel great; I have gained back 10kg and I can eat pretty much everything without having to drink copious amounts of water (I do take the occassional sip, but only small amounts). Weāll see how long it stays like this.
Hello I have been living with Achalasia for 25 years. I will be traveling to the Cleveland Clinic to see Dr Rice next week.
I have been diagnosed with achalasia for 9 years. I am 24 years old now. I have had numerous dialations and the hellerās myotomy, all unsucessful. I have learned to cope and be mindful of the foods I eat. I just want to stay informed incase they ever do find a different approach to treating this crazy disorder.
My wife was diagnosed with achalasia at 19 and underwent the heller myotomy. I am doing research for a class on this topic
HIācan anyone give me some insight about the tests and procedures for diagnosing achalasia? and where is a good place to have these things done??
Hi
Iām an achalasia sufferer and live in Indianapolis Indiana. Iām looking to try to find some others in the area so that we can possible have a meet up group or at least close support group.
Achalasia sufferer
Recently diagnosed with Achalasia. Went thru 2 and half years of drs telling me it was stress.