I am having what I think is a intensification of DD symptoms. When you have one, do you feel kind of like you have the flu? I feel like I have a little fever, general aching and a headache. My IBS is acting up. I have noticed these symptoms before when my lipomas swell up. I also have no energy. It is hard to stand up. I am unsteady on my feet and I don’t have the will to do anything. I don’t even have the energy to do things I want and need to do. Do you all ever feel like this? I have a big DD just under my jawbone that is bothering me a lot. It feels like a toothache kind of. It rolls around when I push on it. It feels like the DD affects the whole body. Mine gets worse when it gets cold. I do feel somewhat better in the warm weather. It is hard to see why DD effects so many different parts of the body. We all have similar complaints and symptoms. It must be something throughout the body’s cells. The way the lumps spread often in clumps or chains it seems like it is a virus or something. Stress does make it worse. Like your resistance to it goes down. I have been under a lot of stress the last few weeks worrying about my grandson’s health. This translated to feeling miserable physically. It is hard not be be affected by the illness of an innocent child. I am so grateful for the doctors and nurses who try to help the suffering in the world. : )
Flare ups must also vary in intensity…some days like Thursday I was so sick…I thiught I was geting the flu…yesterday I did some housework and today I am blessed with lots of wonderful(yea right) stings all over…my friend thought it was funny to send me a joke about chocolate warning and in the email it was four extremely overweight gals in bikinis…haha…that depressed me more and now my IBD is severe as well as the pain from the DD…I also have times where I dont even feel like getting out of bed and if it wasnt for the animals and the grand kids I wouldnt ever get out of the bed…Thank God I have friends who understand here though…
Yes, to all of the above. It takes a while before we reaize there’s a pattern, and that we’re really not getting the “flu” that often!
It is definitely a systemic kind of condition - every part of us - and our lives and the lives of those who love us! - is affected.
Pushy thing, is Dercum’s, eh?
me
Yes, when I have a flare up, it’s like everything is going wrong at once. I haven’t had one for awhile now, so I’m surviving okay for now.
We are here for ya honey!
Hugs,
Linda
Yes, I think we all go through that when we are flaring. I have been in a flare for several weeks now. Some days are worse than others and the weather does play a part.
Dercum seems to consistant doesnt it we all suffer from it pretty much the same, although in our unique way. I am trying to get over an infection that a bad tooth gave me but I feel like I have the flu, it was cold and rainy yesterday and I had to go out in it. I try really hard to be normal for my family. But my God it hurts. I am exhausted today, its 3pm and I am just getting out of bed, I feel like a truck hit me. All we did yesterday was go into town to a Sams store and came back got ready and went back to go out to dinner and a movie, but afterwards I did have to stop by the grocery store. On second thought I really over did it yesterday! But I figure if I am out I need to get as much done as I can because we live so far from town (25 miles) . But I am a train-wreck the next day. I am so weak. I can hardly walk, lift my arms even typing is difficult.
But we have God and our friends here that understand our pains. Thank you to everyone here for your support and know I am here for you as well, I love you all.
God Bless,]
Brennie
I am so tired…I went to the barn today to show a horse and to give one away…I was so weak …I couldnt put the halter on the big one and I thought he was goign to hurt me badly
I am so sorry, I too just get overwhelming bouts of fatigue and just have to lay down immediately. It feels like I’m melting or fading and I am so exhausted I can’t do anything. I rest for awhile and sleep halfway and then try again. I wouldn’t go to the barn alone anymore for your and the horses safety though. I rarely go anywhere alone just for this reason I never know if I might just fall out somewhere.
Hope you can rest and de-stress for awhile.
Hugs,
Davana
I know this is progressing fast now…I cant bend over with out pain in my hips and back…I did the dishes and I am burning up…I feel alot more lumps in my legs and now there is a lump in my lower backmon the spine - so NAH ,Soc Sec disability Dr…I hope this slows down some…Does anyone whose had this a while know that it slows down any???
Yes, thankfully it does slow down. There is no rhyme or reason for it but I can tell you that I have been in remission for a few months now That is not to say I don’t ever have lipoma pains but the ones I have now are mild in comparison to the ones that I thought I was losing my mind over.
I hope you feel better soon, I wish I could tell you how to do that but I have no answers.
Your friend,
Sylvia
Mine has only got worse every year and I have had it 41 years at least. Some years I felt better in the warm weather. Then got bad again when winter came. I could no longer count my lumps. They are limitless. I hope that you do not get it as bad as me.
I wish I could tell you this slows down with time, but mine seems to be accelerating. I’m sorry about that, for all of us.
Pamela
Mine has progressed a lot in the past few months, I am hoping it just because its winter and the cold damp weather makes it worse. I am praying it will ease up when it gets warm again. But then I can not stand severe heat either and down here South Texas it gets pretty hot and humid. Can’t win I guess.