NO, the endoscopic surgery is NOT better for those with PCD! The endoscopic version cuts the windows high up on the maxillary (under the cheek bones) sinuses; for those with PCD or CF, the mucus is too thick, and can’t travel uphill against gravity, to get to the windows when they are high up.
Unfortunately, we PCDers still need the old version, where they go in up under the upper lip and then go sideways. This way, the windows are MUCH lower down, gravity can help with the drainage, and there are some RESULTS from the surgery. Do NOT let any ENT or other doctor tell you otherwise!!! You will regret it for years to come, if you do!
That said, the old version is variable. Some people get wonderful results (I did) and others don’t get much from it. It’s a shame they can’t be sure you’ll get good results from it, as the old version is quite an ordeal to go through. The surgery itself isn’t all that bad, but having to keep all that packing in your nose and sinuses for several days is NOT fun!
Be sure you have (and USE) a good room humidifier during your recovery period, or you will wind up with a horribly sore throat; I know we feel we can’t breathe through out noses, but you’d be amazed at how well they humidify the air we breathe through our mouths! I didn’t know, and didn’t use a humidifier, and wound up not being able to eat or drink anything but ice water for 11 days, post-op! Also not fun! Also be sure to drink plenty of fluids (and I do mean PLENTY!)
Anyone interested in that Wiva-vac thing, be aware that the chamber that holds the mucus is VERY small—this was designed for children’s use. I have a medical suction machine, but I currently use a wonderful home-made arrangement that plugs into the hose on my vacuum cleaner. It uses an old mayonnnaise jar as the holding chamber. It works MUCH better than the medical machine, and is easier to clean.
It has made my life SO much more comfortable, I can’t say enough about the benefits of suctioning. Also of sinus flushes (I use hypertonic saline, which gets TONS more stuff out, and does it a lot more easily, too.) Sinus flushes alone are a tremendous help, if you can’t afford a machine or can’t get your doc to prescribe one for you. If you DO suction, though, always be sure to keep your mouth open a little bit, so that suction cannot build up and possibly cause damage. We have pretty weak eardrums, usually. If your mouth is open, the suction can’t build up enough to hurt you.
Laurel (52, PCD/SI, diabetes, SC)