Hi! I just found out our son, Jonah, has Fragile X Syndrome? Is this board active and am I in the right place? Thanks, Penny
hi, i’m not totally sure sorry. i am waiting on my little boys fragile x test at present so your not the only one who’s had a bad time lately then?? Hugs!!
Date: Thu, 6 Sep 2007 05:50:12 -0400> To: mellissasalvage@hotmail.com> From: fragilex-cpt5830@lists.careplace.com> Subject: [fragilex] Am I at the correct spot?> >
yes it is.
what state are you from each state has a local support group
and the national is in california www.fragilex.org has lots of info
-----Original Message-----
From: PennyC fragilex-cpt5830@lists.careplace.com
Sent: Sep 6, 2007 5:50 AM
To: mmpopejoy4@peoplepc.com
Subject: [fragilex] Am I at the correct spot?
I was wondering if there are parents out there who have children between the ages of 8 to 12 with fragile x pre-mutation if so I would like some stragies that where helpful to you that you have tried wiht managing the behavior side of things.