Am I at the correct spot?

Hi! I just found out our son, Jonah, has Fragile X Syndrome? Is this board active and am I in the right place? Thanks, Penny

hi, i’m not totally sure sorry. i am waiting on my little boys fragile x test at present so your not the only one who’s had a bad time lately then?? Hugs!!

Date: Thu, 6 Sep 2007 05:50:12 -0400> To:> From:> Subject: [fragilex] Am I at the correct spot?> >

yes it is.
what state are you from each state has a local support group
and the national is in california has lots of info
-----Original Message-----

From: PennyC
Sent: Sep 6, 2007 5:50 AM
Subject: [fragilex] Am I at the correct spot?

I was wondering if there are parents out there who have children between the ages of 8 to 12 with fragile x pre-mutation if so I would like some stragies that where helpful to you that you have tried wiht managing the behavior side of things.