Hi! I just found out our son, Jonah, has Fragile X Syndrome? Is this board active and am I in the right place? Thanks, Penny
hi, i’m not totally sure sorry. i am waiting on my little boys fragile x test at present so your not the only one who’s had a bad time lately then?? Hugs!!
yes it is.
what state are you from each state has a local support group
and the national is in california www.fragilex.org has lots of info
I was wondering if there are parents out there who have children between the ages of 8 to 12 with fragile x pre-mutation if so I would like some stragies that where helpful to you that you have tried wiht managing the behavior side of things.