I have not had pancreatic surgery. I have been lucky so far, on that
front. I was hospitalized for 2 weeks, developed 3 potential pseudocysts.
However my body did not form the protective shell around the pseudocysts,
instead it just reabsorbed the pancreatic fluid. So technically they were
not true pseudocysts. The pancreatic surgeon (not other pancreatic
specialists were nearby) said it was one of the worst cases of pancreatitis
I was told my my GP/Internist that I would be able to go to work immediately
upon release. I did try on 2 separate occasions to work but became
exhausted after a couple of hours. Being told I was “fine on paper” didn’t
agree with how I felt. So the pancreatic surgeon referred me to Dr. Emad
Abu-Hamda with Indiana University Medical Center.
Abu-Hamda thought I had a fairly serious episode of acute pancreatitis and
said it could take months to resolve itself. That was disheartening but
also encouraging since it meant the prognosis fit with how I was feeling.
However, since I am still having some problems he did another CAT Scan and
an Endoscopic Ultrasound (last week). He said there was significant
scarring of the pancreas meaning I had chronic pancreatitis. I was just
recovering from the antestetic so I was not up to my usual mode of
questioning. He is setting up a meeting with me next week or the following
one to discuss what this means.
But it means that the Biaxin (antibiotic) I was taking for a salivary gland
infection was not responsible for the pancreatitis. I had that infection
for 5-6 mo prior to the acute episode. It went away with the 2 days of
Biaxin I did take and with the IV Levequin (another antibiotic).
I have been on an extremely low fat diet (under 10 g/day) and been watching
my blood sugar. It sounds like that is what I must continue to do. Also no
alcohol which isn’t that big of a deal but I will miss having a glass of
wine now & then. I’ve been cruising the web and putting together a “fact
sheet” for me and a list of questions for Abu-Hamda. I came across Care
Place via The Pancreas Foundation.
So that’s me in a nutshell. How about you?
I was looking for a group FAQ but haven’t been able to find it. I always
hate stepping into a group and posting something wrong or taboo. Then 50
people will say, mostly nicely, something to the effect of “you dumb bunny,
read the FAQ” Could you point me to the location?
On Sat, Nov 8, 2008 at 11:28 AM, Terri M <