Im 25 and was diagnosed at 18 days old and given a colostomy . still have it . anyone else have this?? and do u suffer any other effects from hp due to the colostomy?
hello
I had a colostomy.
hate the scar.
My son had a clostomy bag for about 4 yrs, but they “reconnected” him at the age of 4 and has had no complications since then. He does have two very large scars from the 4 surgeries he had.
My name is Crystal and I am 34 years old and I had an ileostomy when first diagnosed with HD had it reversed a year later and then due to complications I received an ileostomy again 8 years ago at age 26. It was supposed to be temporary for the first year but I have done much better with the ileostomy than I was doing for the 7 years prior to getting it that no one wants to reverse it (including me!). I do suffer from things related to the HD still but not because I have an ileostomy, that actually makes the duration of any issues I have shorter. I also have had blockages with the ileostomy that may or may not be HD related, really no way to tell. I hope that helps some of your questions. I am not on here very often at I have 2 little ones at home right now and one with current medical issues we are working through. You are welcome to contact me directly at crystal@knollinc.com
Crystal Knoll
----- Original Message ----
From: Ozz hirschsprungs-cpt8831@lists.careplace.com
To: crys1973@yahoo.com
Sent: Sunday, April 27, 2008 11:24:39 PM
Subject: [hirschsprungs] Anyone have a colosty becouse of Hirschsprungs?