HI Folks,
I hope someone will be able to advise me. I’m a 44 year old with a long history or autoimmune diseases and little support. My deafult diagnosis is ME/Chronic Fatigue wiht hypothyroidism, celiac disease and alopecia.
I don’t want to bore you all with my story but I’ve been very tired and weak for years. For the last 6 months or so I’ve noticed hyperpigmentation marks on my spine - about 5 of then about 4cms in diameter and spreading; i’ve also noticed my hysterectomy scare is getting darker and for the first time in years I look well - my usual pasty coloured face looks tanned. I also have started to fill pretty nauseous especially on moving and get very faint spells. I’m usually OK for about 30mins in the morning and then feel lousy. I have had to stop driving as I feel sick and woosy (no sure how to spell it). I have also started losing weight and gone off my food.
I have hypothyroidism and am on T3 and T4 replacement; I’m also on HRT - combined estrogen and progesterone pacthes. I suspect Addison’s but I did have ACTH test several months ago but it came back normal; though I have read that women of my age, with thyorid probs and on HRT sometimes have false negative results. Since my ACTH test the hyperpig has got worse (in fact I did not show pigmentation areas to consultant as I thought they were a passing thing!) and fatigue/weakness etc deteriorated. Nausea etc got much worse in last 10 days. I also have low testosterone (below range) and on the low side DHEA - but these all from early July so don’t know if they are accurate. My esrtrogen levels are just below normal range despite taking max dose HRT.
So, can anyone recommend a consultant who will not just fob me off with “ACTH is normal so you’re OK” or who might take a genuie overview of my hormones. I have been told I am just unlucky and to deal with it.
Apologies for the long rant…I’m sure you all appreciate that feeling!
Many thanks.