Do any of you suffer from Vulvar Vestibulitis for Vulvodynia (or anything similar to these conditions) too?
I was diagnosed (after almost a year of misdiagnoses and other crap) with Vulvar Vestibulitis in April 2006. I had a partial vestibulectomy in July 2006 and then a partial perineoplasty in July 2007. ‘sigh’
I was diagnosed in May 2007 with IC but I’m sure I’ve had it since I was a child. It wasn’t until I was diagnosed with VV that I learned, by accident online, what the heck IC was! I was SO HAPPY to know there was a NAME for what I’ve been suffering from for as long as I can remember!! I had to track down a urologist on my own since of course a ‘regular’ doctor didn’t know what was wrong with me (as was the case with VV; it took almost a year of other doctors before I finally searched out a Vulvar Specialist here in Portland Oregon - thank God there was one!). I always thought my IC (back then I called it “my problem”, seriously that was my name for it!) was just some quirky thing I had to live with; that’s kinda what doctors told me through the years. One doctor about 10 years ago said my urethra was slightly tipped toward my vagina which was probably causing the problem…they were too close together. Um ok???
Anyway, that’s a brief synopsis of me…for now…til I can write more…I’m at work right now!!
Thanks for “listening”!