Arnold-Chiari Malformation Member Introductions

Please take a moment to introduce yourself to the community. Everyone here has something to share about Arnold-Chiari Malformation. For the discussion boards, we ask that you keep your full name and location private.

Founder of the TransGlobal Health Community Center at http://transglobalhealth.com

Life is about health, family and friends, but sometimes its hard to keep focus on what is most important

I live in the northeast and suffer from seasonal depression. I basically hibernate from november until april. Besides moving, I’d really like to talk to people about how they’ve conquered their depression. I’m a really cynical person and depression has got me beat :confused:

I have Arnold Chiari II with an 18mm herniation. I had a posterior fossa decompresson on June 28th 2006 and still have a lot of pain related.

I received your email announcing your site . I have Chiari and syringomyelia

I had decompression surgery in February 2006 for Chiari I Malformation, 10mm. I am still experiencing issues and probably will for the rest of my life. It has always helped having support from others that are going through the same things you are.

Diag. in Jan. 07 - ACM I
Decompression Surgery - 3-22-07

Know someone with Chiari

I am living with this condition. I am looking for treatment used other than surgery. My condition is not critical yet but it is getting worse.

I want to learn more about post-operative stuff. I had surgery 3.20.07 and am back at work but dealing with life is hard!

I have chiari, EDS, retroxflexed odontoid. I am tired of being sick.

suffer from this condition

I have been sufferent with this disorder for years and now I am 19 and finally have a diagnosis. I am a nursing student and recently had to take a leave of absence because of the severity of the symptoms.

will i die from this disorder, how can i get immediate help, my left side of my head is swollen

i have had a decompression and a cervical fusion and would like to know more about last effects or return of symptoms.

i AM SENIOR WITH THIS CONDITION.

my best friends daughter has this condition & is currently very ill & hospitalized. She is a young adult with young children. I have researched this condition & am not finding much useful information. I would like to know if anyone out there knows of a hospital or medical center with some expertise in treatment.

I have Chiari, and live in constant pain. I have had 3 brain surgeries and still seeing specialists. I am currently having problems with my lower back and spine. I would love to talk to anyone who has this disease.

want to connect with others suffering from chiari and their loved ones. In my family so far I have it and two of my four kids have been diagnosed . I have had decompression and fusion surgeries . I like to think of myself as an inspiration to those who feel lost or alone in this battle.