Arnold-Chiari Malformation Member Introductions

#1

Please take a moment to introduce yourself to the community. Everyone here has something to share about Arnold-Chiari Malformation. For the discussion boards, we ask that you keep your full name and location private.

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#2

Founder of the TransGlobal Health Community Center at http://transglobalhealth.com

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#3

Life is about health, family and friends, but sometimes its hard to keep focus on what is most important

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#4

I live in the northeast and suffer from seasonal depression. I basically hibernate from november until april. Besides moving, I’d really like to talk to people about how they’ve conquered their depression. I’m a really cynical person and depression has got me beat :confused:

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#5

I have Arnold Chiari II with an 18mm herniation. I had a posterior fossa decompresson on June 28th 2006 and still have a lot of pain related.

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#6

I received your email announcing your site . I have Chiari and syringomyelia

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#7

I had decompression surgery in February 2006 for Chiari I Malformation, 10mm. I am still experiencing issues and probably will for the rest of my life. It has always helped having support from others that are going through the same things you are.

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#8

Diag. in Jan. 07 - ACM I
Decompression Surgery - 3-22-07

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#9

Know someone with Chiari

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#10

I am living with this condition. I am looking for treatment used other than surgery. My condition is not critical yet but it is getting worse.

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#11

I want to learn more about post-operative stuff. I had surgery 3.20.07 and am back at work but dealing with life is hard!

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#12

I have chiari, EDS, retroxflexed odontoid. I am tired of being sick.

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#13

suffer from this condition

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#14

I have been sufferent with this disorder for years and now I am 19 and finally have a diagnosis. I am a nursing student and recently had to take a leave of absence because of the severity of the symptoms.

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#15

will i die from this disorder, how can i get immediate help, my left side of my head is swollen

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#16

i have had a decompression and a cervical fusion and would like to know more about last effects or return of symptoms.

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#17

i AM SENIOR WITH THIS CONDITION.

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#18

my best friends daughter has this condition & is currently very ill & hospitalized. She is a young adult with young children. I have researched this condition & am not finding much useful information. I would like to know if anyone out there knows of a hospital or medical center with some expertise in treatment.

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#19

I have Chiari, and live in constant pain. I have had 3 brain surgeries and still seeing specialists. I am currently having problems with my lower back and spine. I would love to talk to anyone who has this disease.

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#20

want to connect with others suffering from chiari and their loved ones. In my family so far I have it and two of my four kids have been diagnosed . I have had decompression and fusion surgeries . I like to think of myself as an inspiration to those who feel lost or alone in this battle.

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