Hi again Callie,
I have never drank anything diet but I put away a six pack of regular Pepsi a day.
I don’t think artificial sweeteners have anything to do with DD, I personally believe that we all had a predisposition for DD and then something brought it to life. My own DD started really bothering me after an on the job injury and several series of cortizone injections. and pregnizone tablets for swelling & inflammations. Whether the stress and pain or cortizone woke it up or a combination of the whole stressful situation. I’m not sure, but everywhere I had injections is where it is the worst for lumps and pain. Now when I overwork or get upset or too tired I have a bad flare . The weather makes it worse …too cold or hot. Some foods do seem to make me worse or just eating is a chore because it feels like my stomach is already full and eating makes me miserable and bloated, gassy, indigestion, etc. I too itch when I’m getting a new lump and just kind of itchy skin all over .
I use baby oil and it seems to help and it doesn’t seem to cause any trouble. I take 400 mgs x 2 a day of cimetidine (tagamet) and it helps my stomach and is suppose to shrink lumps by cutting down on acids that DD uses to grow. I take morephine 30 mg x 3 a day for pain and Darvocet N 100 for breakthru pain, and then when I can’t sleep I take zolpidem (Ambien) 10 mg. Dr Herbst prescribed some other things based on my particular situation but they’re not directly for DD.
I try to think of what I can still do and how lucky I am that I can still walk, talk, and laugh with my friends and family. They;re are many horrible diseases out there and yes I have a rare, horrible, unknown bugger to deal with but …IT COULD BE A LOT WORSE! I am not dying with a long horrible disease like Aids or Cancer or MS or Emphesyma, or, or,. I have bad days and feel awful sorry for myself and just make myself miserable until I remember to be grateful for all the wonderful blessings in my Life. I have friends and family who try to help me and understand what I’m going thru and that is so wonderful.
After having no one believe me for so long it is such a blessing to have Dr. Herbst’s support and the folks on this site. Someday they will figure this disease out and we will be a part of the reason why someone else won’t have to suffer like we have. I just take one day at a time and take it easy nowadays. I am a perfectionist and a control freak so this is a big lesson for me to learn to change and accept things the way they are instead of how I want them. I get frustrated and mad and wonder why me and I throw a fit and then I hurt even worse, sooooo… I’m slowly learning to pick my battles and figure out what’s really important in life. I hope you can find some relief for your pain and itchys and know your not alone. We’re all in the same boat and some days are the pits. Feel free to call me anytime you if you need to talk. 360-886-2265