Atypical trigeminal neuralgia and NICO


#1

Has anyone ever heard of or been diagnosed with NICO? It stands for neuralgia inducing cavitational osteonecrosis. I have had the glycerol injections and the mascrovascular decompression done but I still have some shocking pain, including pain in my teeth and jaw line area. I had read about NICO and it seems to be a possibilty that I may have this condition but I can’t find a doctor that even knows what I am talking about so please if anyone knows anything about this condition I would love to hear it!