Hi I am new and I need to know if anyone else is going through it. My daughter is now 15mo and has been diagnosed with HD had her first surgery when she was 4 days old. Shes doing ok but just recently shes had irrigation cause she wasn’t eating at all and was throwing up bile…they found out she had inflammation in her bottom through a camera study. so treated her with antibiotics, but before that I have never seen bowel loops or heard her stomach like this. It looks like its painful but the doctors are not concerned. She has an appointment tomorrow im hoping they have some kind of relief cause its so frustrating when your baby is hurting and you cant fix it. Anyone help?
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