Can't stand this pain no more!

Ugh, I'm so sick of this.... EVERY DAY waking up hurting.... and then after taking my meds, only about 1/3 of my pain goes away.  My doctor apparantly hasn't  heard of or doesnt believe in TOLLERANCE.  Nor do they believe that new things are hurting...

Lately it's my knees, wrists, thumb, ankles, toes (big ones)... I think my body is being attacked by SOMETHING and by the time my doctor believes me I"m going to be dead from it! 

This pain is beating down my spririt like a monster with a sledge hammer.  I'm not far from being flattened to the ground. 

50 mgs of methadone from my "pain spec." and the whole 9 vicodin he gives me for breakthrough aint cutting it.  waaaaahhhh.

This is just too fucking much.... I've resorted to the low life actions of asking my friends for their pain meds.... what kind of person am I that does this?  My friends need them for themselves.  My doctors wont help... god helps those who helps themselves and that's exactly what I"m going to do.

 

I"M DONE, I'M TIRED AND MY LIFE  OF PAIN ISN'T WORTH THE SHIT ON THE BOTTOM OF A PIGS FOOT.

I've been there kiddo - I really have been.

I've done the calling around - the begging for pills - it sucks BAD.

Find a new doc.  Take in research on auto-immune diseases and the pain associated with them.  Maybe find a pain specialist or chronic pain manager. 

Have you ever taken anything that really works??  My doc even had me try pot - it didn't work - but what about Tramadol??  What about anything over the counter??  Even mega dosing??  Alieve, Tylenol, anything?????

What else do you try??  baths?  anything work even temporarily??  meditation?

I'm racking my brain thinking of all the crap I have tried - sometimes it works and sometimes it doesn't.  With traveling pain - joint pain (sounds VERY RA/auto-immune) what works today might not work again and what didn't work last week might just work - so try it all over and over again. 

Sometimes I take Benedryl and it relaxs me enough to ease some of the joint pain.  Baths can work but sometimes the heat hurts and cold is better.  Tylenol PM can help - it's just higher dose Tylenol with Benedryl.

Drinking booze makes it all worse.  Drinking water helps.

I wish I could take some of the pain for you.  We could trade times so each would at least get some time off!

Love

Shell

 

 

Hey Shell,

I take methadone which USUALLY works only I have to take more than I'm perscribed.  I'm given 50mgs a day and I neeed at least 80 a day to feel pain free enough to get on with my day.  I'm affraid to tell my doc that I'm taking more than he said becuase I signed one of those contracts with him too... but by taking the 80 like I shouldn't, that leaves me hanging at the end of the month sometimes with either 20 or 10 mgs a day which leaves me in agony.

This song has been going thru my head lateley.... by Gary Jules, Mad World.... the part where it goes "I think it's kinda funny, I think it's kinda sad, the dreams in which I'm dying are the best I ever had"  When I have dreams like that, I'm in NO pain. (Not to mention I'm still thin and not depressed and my daughter still lives with me - but that's besides the point.)

 

Pain wraps around my entire body like a wet heavy blanket.  One that smells bad... mildewy... it weighs me down whenever I try to walk anywhere...or do anything. 

Maybe if I jump in the ocean with it, I'll sink.

Hello Just Sue,  I’ve been going through what you are for the last 10 years.  My file is 3 inches thick.  I saved all my records to help with my disability.  I have generic vicodin (hydrocodone 7 mg) for pain.  I take xanaflex also as a muscle relaxer.  I can only take that at night though because i have to be able to drive my kids during the day.  Three weeks ago i started taking Cymbalta because the pain has been increasing and i can’t find anyone to operate because i’m only 40 so i have to learn to live with fibromyalgia, migraines, chronic back, sleep apnea and depression (read my story if you want).  Anyway, i was getting were i wanted to die again.  But i have a 16 and 10 year old and i wouldn’t be able to ruin their lives that way.  So i asked my doctor for Cymbalta.  I have taken many anti-depressants in the past, but with this one it started blocking out my pain signals.  Really took away the muscle spasms too.  And i’m not as depressed.  And a third bonus, it curves my appetite.  I have lost 14 pounds in 2 weeks and kept it off.  I am still losing.  I really have to make myself eat though (never a problem before) because of the Cymbalta.  So don’t give up!  I know what you mean about running out, i use to run out of my vicodin because i’d have to take more than the allowed 3 a day.  I never would have thought, but with this new medicine some days i don’t take any pain pills.  Just the Cymbalta.  The 1st week it was hard to get adjusted though because i was having thoughts of giving up.  But i made it through and am starting into my 4th week.  I’ve been fighting with my son’s school because he was recently diagnosed with ADD and has been having muscle tics of the shoulder, neck, head and face.  That added to my stress.  It’s hard enough getting through the day dealing with pain.  I’ve explained that to everyone in my life but they keep giving me more to deal with.  And i’ll keep battling with the school until they give my son the help he needs.  Take care and focus on you and feeling better.  To heck with everyone in our lives that bring us down and give us more to deal with.  They don’t understand unless they suffer like we do.  Also, have you been to a Rheumatologist?  If you don’t have fibromyalgia or chronic fatigue already, you should be checked for that.  That’s how i use to feel - weighed down.  Maybe they should check you for Lymes disease (from tic bite) too.  I was tested for Lupus because i have a postiive ANA but no autoimmune disease has showed up yet.  Good luck on your diagnosis.

hello there, i see there are alot of people out there just like me.i too live with daily pain.they keep coming up with new diagnoses, but nothing seems to be getting fixed.i know have fibromaylagia as well. they are trying hard to get me on an antidepressant, but im just so sentivive to meds, and it seems like im already taking so many things for pain control and to sleep at night, i hate to ad one more pill to the list. cymbalta does look kind of promising, i think i will maybe try that. i live in a small town, and around here, the doctors,“any doctors” wont prescribe painkillers, they all feel a good antidepressant will fix every problem you have. what ive always heard is the four a day rule,is this true? if you need to take more than four pain pills a day, it means you should switch meds, right? i have a friend whos in real bad shape, im not sure of all thats going on, but she gets these horrible headaches, where her eyes and face actually swell up, and her eyes swell shut.she has a metal plate in her neck, from an old surgery, shes thinking it has something to do with that.she has fibro,a severe case of it,she just lives her life as if she were a cancer pain patient, i feel bad for her, ive even been trying to get her a good dr, but around here, they wont help her. there is a methadone clinic here, since she has such a huge tolerance to pain meds, but always still hurting, wouldnt methadone maybe a good choice for her? she even got into a pain clinic, they gave her ultram, she wouldnt even get them filled. she probably comes off as a drug seeker to them, but she says, shes tried all that, and it doesnt work! shes sick of suffering,she used to go to the er every week, but now they wont help her up there anymore either, this poor woman needs pain management along with some other problems,any advice on where she should turn next?

ultram is the dumbest thing a doctor can give you for pain... he may as well be saying,,,,you're a drug addict and I know this for sure so here's something to get you out of my office.

Where do you live Leana?

I take methadone... I'm supposed to take 50 mgs a day.... same dose for the last 4 years... can my doctor pronounce tollerance? I usually need 70-80 mgs to get through my day... but they will never understand.  Why did he become a PAIN MANAGEMENT SPECIALIST in the first place, if they don't believe you are in pain?  Where they hired by the DEA?  As a set up to keep narcotics out of our systems?

I'm really not paranoid... just ranting.

 

ultram is the dumbest thing a doctor can give you for pain... he may as well be saying,,,,you're a drug addict and I know this for sure so here's something to get you out of my office.

Where do you live Leana?

I take methadone... I'm supposed to take 50 mgs a day.... same dose for the last 4 years... can my doctor pronounce tollerance? I usually need 70-80 mgs to get through my day... but they will never understand.  Why did he become a PAIN MANAGEMENT SPECIALIST in the first place, if they don't believe you are in pain?  Where they hired by the DEA?  As a set up to keep narcotics out of our systems?

I'm really not paranoid... just ranting.

 

i as well as the friend i was talking about live in penn.do you have any idea about the swelling and massive headaches she gets? is there any way at all that maybe taking too many painkillers cou;ld do this? i have wondererd that, but didnt ever want to offend her, maybe she has a serious medical problem, that needs to be addressed, its just i always wonder when she goes to the er, why wouldnt they keep her overnight, and do lots of tests? they give her a pain shot, and send her home?

I have never heard of what your friend is suffering but my god, it sounds awful.... I don't think too many pain killers could do that.... I take A LOT sometimes....  I swelled up like a balloon when I was given Depakote... maybe this is a side effect from a different med she's on?  I would go to the ER and insist on staying until they figured out what the heck was wrong.. instead of giving her the proverbial bandaid and sending her on her way....

wow, give her my best... and good luck!

Hi this is grannygray.

When I read the part about your friend's problem with her face swelling to the point where her eyes swell shut the first thing that popped into my head was allergies. 

My Mother had allergies which would cause the same kind of swelling your friend gets. My mother.s allergy was triggered by insect bits ie black flies and sand flies as well as certain foods.

I used to get migraines from red wine and choclate and as long as I stay away from these items, no migraines. There are also a number of allergens that can cause migraines such as chocolate, red wine, the yellow food coloring used in some cheese.

Those are the ones I know of but I bet there are a whole lot more. Has your friend been tested for allergies, If not I would suggest she does. It my not be her problem but if it is there are alot of things that can be done for her.

 

Hi everyone! Just got out of 3 month flareup. Had to use Methadone for 6 days to get the pain under control. Back off meds because things are calming down for now. I use heating pad all the time. Found info about Magnesium helping with alot of pain in muscles. I got calcium with zinc. Glusocamine & MSM & Chondroitin, Total Mins by Country Life; Natures Blend 1000 mg Fish Oil omega -3 and Flax, Fish and Borage oil gel capsules. I recovered fully in two weeks. I also use Rose and lavender oil to relax, do deep breathing, listen to small sound machine with waves or rain sound. It really helps to get your mind off the pain. Meds work better also. I had to change hobbies like do puzzles, read and write stories. Have heard that methol is a great rub for aching muscles, I need to try. Also heard Olive oil is good to rub on joints and ofcourse eat with. Drink white tea. Its stronger then green tea. I also put it on my dry skin. Read article about Cob liver oil has been used for centuries and this last 100 years we stopped. It is 100 times stronger then fish oil. I plan on getting some of that. I have been praying alot more. Also found more interesting sites with info. www.healthiertalk.com;www.FibroFix.com; www.American Pain Foundation; www.Lyme Diease Network; lymphnotes.com; http://phoenix -cfs.org/ConferenceReports.htm; Entoez Pud Med and http://journal.aol.com/KMC528Lifeasweknowit/
As far as swelling, I get swollen around neck, face, glands. I have to use heat and gentle massage in areas. I had 5 months of acupuncture and it really did help, very slowly but I could feel the difference. Read all you can and good luck everyone!..Deb

Hi Deb, I have an older sister named deb, she also has this cfs it is helpful to talk to people
that have the same illness, I cant stand this pain and have other issues, asphma, arthritis,
and carpel tunnel starting again after 20 years, cant work and am broke. I have tried natural
meds i.e. magnisium, flakseed oil and e, chondroidin, and others, it helped a little but am
going through my change and have fibroids too! lucky me but my 19 yr old is helping me
she learned all about the illness, her friend she works with told her a lot about this coz her mom had it too. she is a Debbie too, “how funny”. she says her had cfs for 5 yrs and it
went away and she is back to work. My doctor told me that it doesnt go away. What do
you think? Can this terrible illness go away
thanks for the info
hugs back at ya
cindy

Deb chronicpain-cpt2152@lists.careplace.com wrote:

Hi again everyone. So far I have met 30 to 40 people who have firbo/CFS and other problems with health issuses. One thing I see in all of us is we are so stressed out that we no longer have any quality of life. The pain eats up our strength and fogs or brain so we feel more then we should. I know everyone gets to that point where they say they can’t take anymore. I realized that I really have made it this far because I am a strong person. We all are. To go through what we have to in a day just to survive. Theres no magic pill that will make everything ok. Each person has to come to terms with these illnesses, learn all you can about them, be willing to try many different measures to improve your quality of life. We are here for a reason. Most modern Drs. are just trying to drug everyone. If you look to eastern medicine, they have been dealing with the mind/soul connection for 1000s of years. There is a herb for every part of your body. Energy flows thru the body, and the pain is blocking that energy. I know Japan is being pleagued with CFS but maybe it because they are trying to live like us, the fast pasted, modern, high tech stressful live everyone wants. We have forgotten how to relax, laugh, enjoy simple things. Maybe we are our worst enemy!..Deb

Hi again, deb your are so right, it is a fast paced life style, acupuncture does work for some
people. My mom finds that it helps the head aches. I am going to try it, I will try anything
I am tired of vicoden. but I do laugh and have fun at home with my two teens. they are funny
people. thank god for them.

Deb chronicpain-cpt2152@lists.careplace.com wrote:

On Thu, 12 Apr 2007 11:09:07 -0600
JustSue chronicpain-cpt2152@lists.careplace.com wrote:

Am there, doing that!  I feel your pain and I agree, I'm tired of it and mad as hell!

Being in such pain does affect every day living, I can't function like a normal person any more.

Warm water therapy does sooth the pain somewhat but you can't stay in the pool 24/7.

 

 

 

On Sat, 21 Apr 2007 14:45:36 -0400
dj3756 chronicpain-cpt2152@lists.careplace.com wrote:

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Am there, doing that! I feel your pain and I agree, I’m tired of it and mad
as hell!

Being in such pain does affect every day living, I can’t function like a
normal person any more.

Warm water therapy does sooth the pain somewhat but you can’t stay in the
pool 24/7.

dj, I now how angry pain can make us all, but I am trying to control my anger. Anger makes me fell stressed out and this makes me hurt more. The hardest thing I have had to do, and I am still having so much trouble doing this, is trying to accept this pain. I feel as if an alien has invaded my body and it has control not me. My Psychologist told me that is what is holding me back from accepting where I am today. I tell him “I want my life back” but I have to try and deal with the deck of cards I have before me today. It really sucks but I need to try and make a new life and this is so hard to do.

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