I can’t give you much encouragement about finding a cause of the CSA. My assumption is if that were possible there’d be more medical literature about how to treat it. I’m afraid your best hope will be to find someone (neurologist, pulmonologist, technician, etc) who is proficient at treating the symptoms…like I did. So I hope you have good insurance if you plan to have a lot of expensive tests run.
My neurologist was very pragmatic…which I really liked. She even spurned the expensive overnight sleep study in favor of trial and error adjustments based on using an “auto set” CPAP machine.
One piece of info I did pick up is that CSA can be caused by too much air pressure from the CPAP or VPAP machine. I believe one of the things they do during the overnight sleep study is to increase the air pressure until CSA is induced, then back off on the pressure.
So you may not have CSA if someone finally gets your correct CPAP pressure adjusted properly. The auto set CPAP has a computer chip that gathers data on leaking, mouth breathing, etc. This helps an experienced sleep disorder person to make educated guesses regarding pressure settings. The tricky part is that in some cases the autoset machine thinks you need more pressure, when that adjustment may be doing more harm than good.
I’ll mention one other point that helped me a lot. I started using CPAP in 1995 when the masks were very primitive, and had to be pulled so tight to prevent leaks that the movement of the mask while sleeping really butchered my face. I’ll bet others in the group can relate to that.
What a relief it was when I was introduced to an Activa Mirage mask. You don’t even have to pull the straps tight against your face. The way it’s designed, connecting the air flow to it literally creates a suction that sucks the mask to your face. I have few if any problems with mask leakage. When I’m connected up, I lie virtually motionless when I sleep. I think there’d probably be some leakage if I tossed and turned all night. This mask is so comfortable you barely know it’s on.
I hope this additional info is helpful to you.
savvy1 email@example.com wrote: