I have had major back surgery, and have extreme pain. The surgery was in Dec. '06. Then there was an auto accident and two falls. I am a woman who is active, creative, spiritual, and generally very positive. As I feel stronger every day, my positive attitude is returning. My husband is a wonderful man, and unfortunately has an abusive temper. It is very difficult for me to climb over and has been a major hurdle for me since I was diagnosed. We got married in May of last year, moved, and changed our life style considerably within two months of the marriage…then I was diagnosed, and told that surgery was necessary. His first wife had MS, and he wasn’t ready to deal with “another sick wife”. Stressful and very difficult on many levels for both of us in very different ways. Somehow, we have made it through the wormhole and are beginning to come out the other side. However we are both carrying some schrapnel. We are going to find a support group locally; he has agreed to do personal counseling for his temper, and in the meantime, I need some help myself. (I am also in counseling). I have never been through anything like this. My husband expects me to jump through hoops faster than I feel ready, partly from his impatience and partly from his experience in the past. I am not his past and am having difficulty getting through to him as my feelings don’t seem to get the recognition they deserve. I am interested in talking with anyone who has experiences that they want to share. My husband told me about this site, as he has joined, and assumed I wouldn’t be interested. However, I am glad he joined, and I am very interested myself. I look forward to healing in all the ways that we need to and to offering and receiving wisdom from new friends.
would like to talk to those with OCCIPITAL Neuralgia what procedures have been done and what if anything has helped
I am an insulin dependant diabetic for over 20 years and have degenerative disc disease for 11 years. I have had 3 surgeries on cervical ruptures and scheduled for number 4 in May. I also have debilitating Lumbar pain that the doctor says is not a ruptured disc. But I can not stand, sit or walk for longer than 15 minutes at a time. I also have neuropathy in my right thigh. I am taking fentnyl patches, percocet and zoloft for my depression. This has been going on for over 11 years and wonder if it will ever be better. I now can not work and have applied for Social Security Disability.
Just a semi-average woman surviving day to day life. Survivor. City girl at heart longing to be back in a big city. Dog lover. Expecting my first baby in August. Hoping to learn how to love myself better than I have been the past 24 years.
i have fibromyalgia,cfs,dengenerative disk disease
I’m 48 years old…Mother of 3 grown children…Diagnosed with Fibromyalgia, Costochondritis,Osteoarthritis, and Asthma.
I am a SAHM of 7.My 4 older ones are adults now and out on their own so we just have the 3 younger ones at home caleb 10,bethany 8 and Michal 7.I have had fibromyalgia and CFS for about 6 yrs.The fatigue at one point got so bad I was falling asleep in mid-sentence,I also fell asleep 2xs while driving.I couldn’t stay awake and then my muscles would spasm and wake me up after being asleep less then 10 min.So I was always sleeping and always exhausted.Between the fatigue,pain,IBS,migraines and hypothyroid I feel like I don’t have a life anymore.I am looking forward to meeting others with fibro and CFS to help support each other.It is so hard for others to understand.At times it is hard for me to understand…
Hello - from Alaska. I live with Chronic dibilitating intractable pain. It all started 11 years ago while in the Military and a simple herniated L5-S1. After 11 years, I am now living with Degenerative Disk Disease, L5-L3 herniations, Osteophytes, Phase III Spinal Spondylosis L5-L4, A/C Osteoarthritis, Hip Osteoarthritis, Severe Sciatica (both legs), L5-S1 -L4 Neural Foraminal stenosis, NGB and hypertension.
I Am a mother with 2 kids, led until a year ago a very active life but after an accident have been hardly mobile at all. I am ambulatory with a cane.
I am interested in networking with others dealing with Chronic Pain.
I turned 40 this past year. I have a loving husband and combined total of four kids between us. We live in Michigan surrounded by lots of animals and a lot of love. I suffer from many conditions but the worst hit me (even though I was born with it) a few years back so I had to stop working. I suffer from a condtion called Ehlers Danlos Syndrom or EDS. EDS is a connective tissue disease which makes all of my joints in my body weak. I can roll over during the night and easily dislocate my shoulders or wrists. EDS is a collegen disorder. Collegen is in 90% of our body so therefore my entire body is weak along with internal tissues, eyes, ears, stomach, bowel and so on. EDS is also considered a arthritic condition which is very painful. Pain consumes my life. I am tired, weak, scared and trying to figure out what to do with myself now that I can not work. I do have a loving family that supports me but it is really hard to get people to understand what I go through on a daily basis. I belong to many support groups so having that support is appreciated. I also try to give that same support to others that are suffing from some of the same problems that I suffer with. Together we WILL get through this. We just need eachother and love!
Hi my illnesses are a rare autoimmune liver disease called pbc (primary bilary cirrohis) it has nothing to do with alcohol abuse, fibromyaligia, raynaud’s, scoliosis, and possibly lupus and hep c. I love animals…animals are my passion in life and i have learned to enjoy the small things in life and not take things for granted like i used to. I guess when u are in chronic pain you have time to think and smell the coffee. I have really gotten to know myself since i have gotten sick so in a sense its a good thing (I still would rather be healthy LOL) I enjoy meeting people online who understand what’s it’s like to be sick…it seems that healthy people just don’t get it. Also have made alot of good friends online who i am lookin forward to meeting in person. I can’t tell you how much it has meant to me…it literally has saved my life.
I suffer from Fibromyaligia, degenerative disc disease ( 3 surgeries so far ) Allergic to all pain meds. Have done extensive research for fifteen years. Would like to connect with anyone who suffers from Chronic pain, Chronic Fatigue Syndrom and Fibro.
Does anyone really know what to write in these things?!
Chronic pancreatitis/chronic pain
I would like to join your community to talk to others with my conditions and be supportive because i know some of what they are going through and it gets lonely.
Can't remember if I signed in or not . . . *G*! A sign of old age, or just in so much pain, I can't see straight? I am in my crone years, and have suffered from Klippel Feil Syndrome all of my life. That's congenital deformities in the cervical spine, causing several different pain problems.
I also have scoliosis which is pretty bad and has caused me to have sciatica pain. Add arthiritis to that, too; and fibromyalgia. Twenty-two surgeries for a variety of problems, and I'm still here. I live in Georgia, and am Wiccan.
Debbie
Hi Everyone
Wishing you a good morning from the NW USA-been suffering with symptoms of cushings, autoimmune stuff, hormonal changes and chronic pain where I use a TENS unit to interupt the pain signal. Anyway hope we can better serve each other better with knowledge and a better quality of life… ~Sabina
I have been diagnosed with Achalasia for 9 years numerous dilations, had hellers myotomy last sept still have bad spasms currently trying different medications to see what will help. I am 47 2 sons 19 & 14 lost my husband 2 years ago so lost a part of me who I could share any decision making with.
still trying to be diagnosed w/cushings, but have a great neuro surgeon in my corner, who will not give up. will keep everyone informed
I HAVE HAD MCTD SINCE 2003.
I am 55 yr old severely overweight white woman trying to bring some balance and health into my life with the help of God and any friends in my life.