Just wanted to speak with other parents who’s children may have dandy walker syndrome to try and gather information for what help and benefits are available to parents in england.
We live in the US so I’m not sure about whats available in the UK but here our granddaughter recieves PT and OT through in early intervention program. We have also applied for SS security for her as well. Many DW kids have different needs, DW can affect them in many different degrees and ways. Sorry couldn’t be more help.