Please take a moment to introduce yourself to the community. Everyone here has something to share about Cleidocranial Dysplasia. For the discussion boards, we ask that you keep your full name and location private.
hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.
Life is about health, family and friends, but sometimes its hard to keep focus on what is most important
I have Cleidocranial Dysplasia and I am co-moderator of the CCD website on yahoo.
There are members of my family who have been diagnosed with CCD.
I am 24 years old and have Cleidocranial Dysplasia. I am interested in knowing more about CCD in adults.
I am 24 years old and have Cleidocranial Dysplasia. I am interested in knowing more about CCD in adults.
I am 24 years old and have Cleidocranial Dysplasia. I am interested in knowing more about CCD in adults.
Hi my name is Jerry and I was born with Cranial Cliedio Dysplasia (CCD).
I have CD and we have 3 children with CD. Just looking in general for more information on the disorder and listen in on what others have experienced and how you’ve handled the variety of “symptoms.”
I and my two adult daughters have CCD. We now have our first grandson who has yet to be tested as he is just 6 weeks old. I will be traveling to CA to meet with our family genetic doctor for his first visit in a few months. It’s been a long road with my daughters however, with groups like this I’m hoping to help others as I have been helped over the years. Looking forward to the experience, Lorena
My grandson was born with CCD. At the time of his birth in 2001, it was difficult to get much info about it. He has a rare form of CCD but faces the same problems with a soft spot that won’t ever close, he’s deaf in one ear and of course the absence of clavicles.
Tengo una hija que tiene este sindrome, por lo cual estoy muy interesada en toda la información relativa al tema. Tambien quisisea saber si hay algun grupal en español para poder comunicarme con mayor fluidez.
Gracias,
teresa Souza
hi, my name is debbie, mema to beautiful little Miss Lillian " Lilly". my grand daughter was born w/o calvicals. she is 6 1/2 mths old now. is doing good according to her doctor. no one in our family or Lilly’s mothers family has CCD. so this is all a learning for all of us. thank you all for helping us understand it much better.
Hi, My name is Kim and my son and x husband has ccd. We learn new things every day, and sometimes we learn that the new things change back to the old ways!
Why am I interseted?? I have it. 
My 12 year old son has ccd.
Hi,
Welcome to all the new member’s. I have met many of you on http://health.groups.yahoo.com/group/Cleidocranial_Dysplasia/
So many of you already know me. If I can be of help just e-mail me at anitak1982@hotmail.com
I have CCD, the mother of 2 with CCD, the oldest daughter of a man with CCD (spontaneous) and I have 2 sisters 1 with and 1 without.
There are 6 in just my family with CCD.
our 4 1/2 yr old son has CCD
I am 58 and was born with this condition. I have all of the things that are described in every thing that I have read, but have had no really adverse effects until now, and I am wondering if it is related to this condition.
I have horrible arthritis in my one ankle, and I wonder if there is anyone else out there that has lived with this for many years, and is having skeletal problems. All of the doctors say no, but then many of the doctors don’t really know about this condition.
Thanks. It is really nice to see that there is a support group of us out there!!
Jean