Delayed development

I have a 2 year old little boy who has NDI. He has been recently assessed at our local Children’s development Centre in Hereford (England) and we have been told that he is a year behind and that he will have a permanent learning disability. On the other hand, his nephrologist at Birmingham Children’s Hospital has told us that patients with NDI usually catch up between 5 and 8 years old.
We are very concerned and would like to know whether other parents/ carers have found that children affected by NDI are usually behind??

Hi Carline.

I am a thirty two year old woman who developed central diabetes insipidus at the age of five after an operation to remove a benign brain tumor.

I never had developmental delay except I had to take hormones to catch up with puberty due to also having hypopituitarism. As long as you continue to work with your child’s education (reading to him getting him to know his colors numbers and alphabet) he shouldn’t have any trouble catching up as a result of DI.

Take care.