Kristi wrote:
…GI doc said okay your too young time for the laparoscopic myotomy. …
They do myotomies on children. In fact, Heller myotomy is the
recommended treatment for children. Dilatations don’t work as well when
you are young as they do when you are old.
… Now I’m having chest pains, spasms, lightheadedness, dizziness,
fatigue, back pain, and arrhythmias. …
Esophageal pain can be identical to a heart attack. It is possible that
you could feel it in your back. That would not be unheard of.
Arrhythmias are something else.
…GI recommending esophagectomy.
Is this the same GI that said you were too young to have a myotomy (an
incision in the esophagus)? He now wants to remove your esophagus?
Grrrrrrr!!! and I don’t say that very often. Don’t get me wrong. I am
not against dilatations. Some people do very well with them and even if
you had a myotomy you could still be needing an esophagectomy now. You
never know. It just seems wrong that repeated dilatations were done
until you needed an esophagectomy without considering a myotomy. It may
be that the best thing for you know is an esophagectomy but according to
guidelines a myotomy should be tried before an esophagectomy even in
cases of megaesophagus. Sometimes there are two many things wrong with
megaesophagus being just one of them and then an esophagectomy is the
best thing.
Cardiologist said I’m having vaso-vagal responses Gi doc says not
related to vagus nerve.
They clearly disagree. I can see why the GI would say that the
vagus-achalasia issue would not be the cause of other problems. It is
commonly accepted that there is no connection to the vagus problems in
achalasia and heart problems. That is not the same though as saying
there can’t be both problems. You would not be the first to have more
than one vagal problem. It has also happened that a very large esophagus
has pushed against a heart causing problems, but that is very rare.
I’m confused tremendously and I work in the medical profession.
As are many about this disorder. You are not alone.
Has anybody been to vanderbilt or cleveland clinic. If so who did you see
Not me, but many have been to CC and Dr. Rice. I think it is good that
you are considering CC. You definitely could use a real expert opinion.
notan
