I went to see my Dr Friday about more stuff thats happening (my blood sugar and DD are going nuts!!!) and got a substitute(sorry if thats wrong spelling- Im having serous memory issues) and he blew me off…Said I probably have fibromyalgia…Jacka–.I wont go again unless I can see my regular Dr…I have appt Friday to have a nerve conduction test but I already know that some of the bumps are pressing on nerves…
Does anyone else have times when you HAVE TO lie down or where you try to think of a word to say or what word you want to say and you just cant think of it or it takes you a long time to think of it???
I am getting worse at remembering simple words at times. My brain and body
have clumsy spells. I hope everyone has a wonderful Holiday with friends and
family,.
Joan
I have problems also remembering words and how to spell them. It seems when my lumps hurt and my blood sugar is crazy it is worse for me to remember.
Jacklyn
hi!
Merry Christmas in the middle of it all…
…but I thought to tell You that we have special check list of symptoms
how to know if it is Firbro or DD.
It is docent Birger Fager who has done it.
Here in Sweden they do no care about the lipomas. The pain comes from brain and from the fatty tissue that’s not right.
Have You tried Lyrica?
Ice ?
I have had DD all my life diagnosed 1991.
You got to find a speacialist otherwise You are doomed.
It may cost and You may have to travel but do it!
Arieldiva/Sweden
hi
…krohom forgot to say…That the memory things belong to DD. Partly because of the severe pain partly because there is some kind of neurolocigal connection.
My brain MR and blood flow are not okey.
I tried to get “happy tablets” ,like Prozac as we call them here in Sweden, but my speciallist said that they are not okey for DD patient and I was depressed of a real reason, because I had pain and that’s why they are not right medicin.
Pain can cause depression but it is diffrent and you have to use diffrent kind of medication.
Lyrica has helped me with my “depression”, but my memory come and goes.
I have friend who is a doctor and she said that what I think of course You get difficulties with your brain DD has to do with your fat metabolism and brain is an oran mostly of fat… I am sorry…
Just now I am going through the system because my symtoms are like ALS or MS. I fell down last summer in my kitchen and laid on the floor on my face for few hours… Now I drag my left side after me…
Arieldiva
I think the meds they give us like Lyrica and Neurontin just help because they make us so sleepy and we sleep more which helps the pain somewhat. We can’t feel the pain when we are asleep! I still have great trouble getting to sleep and then when my husband wakes me I am so groggy from being doped by the medicine. I can hardly get out of bed. It takes a great effort to go to the shower as I am so very tired when I wake. My memory is definitely getting worse. I used to remember everything, now I ask my husband to help me remember. Like, I took a shower and got out forgetting to wash my hair, which I have always done when I take a shower. I also forgot to put on makeup or dry my hair. I can’t remember if I took my pills or insulin shots sometimes. My husband watches me take my morning pills as I ask him if I took them. It is so hard to concentrate when you are in so much pain. The last few years when I was working, I would sometimes just stare at the computer monitor and try to think of what screen I wanted next. My brain feels like it is numb. I wait for my thoughts to catch up with what I am trying to do. I don’t like to leave the house because I have the aids I need to feel less pain at home. Other people don’t have comfortable enough furniture. I can’t sit on hard wood chairs and am so uncomfortable at restaurants. It makes me cry when people 20 years older than me help me walk into some place or whiz past me when I try to walk. I am 62 and I see all the people who must be in their 80s walking around and I am riding on a scooter or cart. How will I feel if I make it to 80? I can barely stand the pain now and it gets so much worse every year. Tomorrow will bring mixed pain and joy as I go to the grandchildren’s houses to watch them open their gifts. Joy at being with them and making them happy and pain as I am away from my pillows and massagers! Well, I will have a merry christmas despite the pain, and I hope that you all find the joy! Merry Christmas!
I wish everyone a great Christmas…I am one who has not forgotten the reason for the season!!! This site is a great help for me in helping me cope with this disease.
I’m going through all of these things, too, of course. Sometimes I even forget entire conversations - but that’s probably a drug thing.
Having my aids - the wheelchair and the wheeled walker - were a big adjustment for me, but they have given me back a certain degree of independence, and that’s wonderful. I hate when my 60 year old sister, grandmother of 13 and widowed for years, has to help me in and out of the house or the car and hoist my wheelchair around. But she is happy to do it because she hates when I’m home in bed so much.
Our Christmas actually got going three days ago with our family gift exchange - 40 of us in my sister’s family room - wild, crazy, loud and wonderful. Truly a blessing to love and enjoy one’s extended family!
I pray for you all to have the joy and the peace of the One whose biirth we celebrate this week.
me