4mths ago my son (3 1/2) had a very large tumour removed which has damaged his hypothalamus and pituitary gland, hence he now has DI. I think we have finally got the DDAVP dose correct.
Does anyone have any ideas on the effects or what works for them on DI when there is no full button, he doesnt seem to have a thirst but continually wants to eat and eat and eat. this is very hard as a parent. he has breakfast 10 mins later he is hungry again this goes on throughout the day.