Endoscopic Ultrasound

Pancreatitis
#1

well, after the sphincterotomies and several more ERCP’s and the Biopsies and several more bouts of pancreatitis, 5 hospitals stays since July, it’s a matter of day to day, at very least trying to figure out what I can eat, and hopefully digest without a handful of enzymes… Geesh!!!

UGH!!! here we go again… since July, (well, april if ya count the other procedures) anyway, it’s gettin Old…

one a month… thats all we ask… LOL!! Ok, that was just silly, BUT, I find laughing takes the edge off the anxiety…

so, Monday the 3rd I see the Doc for the pre surgery appt, and then the following Monday Dec 10th I do it again…

HOPEFULLY, this time will be an in and out… I’m scheduled for 7am, first case of his day… in some ways I like that… he’s all fresh and caffeinated and awake… BUT, on the other side… he knows his schedule is full and I surmise he wants to be done in time for lunch… or an early day off… so, he might rush…

see how warped my brain is…

this time it’s the endoscopic ultrasound with biopsies… I dont think it’s another ERCP but I dont know yet… we shall see…

IF my pancreas doesnt have any issues being poked and probed so as to cause an active bout of pancreatitis… then I can go home the same day…
otherwise… I get a room for the night (or 2) at UCSF…

PLEASE keep the good energy flowing… I HATE to stay in the hospital…

Now, to remind myself… JUST BREATHE!!! FOCUS!!! JUST BREATHE!!!

#2

Dear barbmac,
Iwish you the best with your ercp today i sending you warm wish and pary things will go good for you.
joe

#3

Ladies

Just sending my support with a big HUG. Please let us know how you do.

Love and prayers

Teresa

#4

BarbMac-

I’m going through the same mental stuff with docs and morning surgery. I’m having my second ERCP on Wed. the 5th. A room has been reserved but I won’t be staying 24 hours - sounds like they want to get rid of me, too. I was hospitalized in 2004 when first diagnosed and came home with TPN that I experienced for a month. That was no fun! I’m hoping this will help with being able to eat so I can put weight on. It’s getting too cold to be so skinny.

I don’t like being put under but I don’t think just a local would cut it. I know I won’t be seeing that new movie that just came out - “Awake.” I like scary movies but could use all the laughter I can get.

I’ll be sending hugs and healing thoughts tomorrow. Let us know how well it goes, and it will go well! I like your attitude and your warped mind. Whatever gets you through, especially a good laugh.

Best-
Kubladi

#5

I’m sending you some extra hugs for all you’re going through…

And for the anesthesia issues (and the movie “Awake,”)-- I’ve had the “awake” anesthesia problem before and thought I was screaming for them to stop the surgery (years before the CP!) and could hear and feel everything but could not really say anything… Please remind your anesthesiologists to keep you safe, but also to keep you out and not remembering what happened. This is their job, but it does happen that the drug levels aren’t right and this happens. I still remind the anesthesiologists several times before any procedure-- local, IV, general, whatever.

Take care of yourselves and good luck to all who are having stuff done. It’s never fun, and hopefully will provide some relief. We can all use that!

Hugs,

Lisa

#6

I had an endoscopic ultrasound in August. I woke up in the midst of it - so heed the warnings of reminding them about keeping you out!! I was able to move, and scream, and I still remember those moments - awful!! And, it made my throat hurt a lot more than usual with endoscopy procedures.

I did have a minor flare up for the following few days. But, I just kept to the “clear” rule and was okay. I guess I’m lucky to be so fond of jello.

Funny story though, I had to go up to Omaha to UNMC…that is about one hour from Lincoln and where my GI is located. I wake up afterwards, and I just want to sleep. The nurses say, “No, you can’t sleep here, you can’t stay here very long.” I am used to the service of my local hospital which is much different. So, I am rearing to go - c’mon mom, let’s get out of here so I can go back to sleep.

So, they send me off. It takes my mom 7 hours to get us back to my parents house. I slept the entire time. A semi jack knifed on the interstate and the alternate route was really backed up. My mom said she counted 22 semi trucks in front of her at one point.

It was the first time going to Omaha for something like that and coming home the same day. I was really nervous about getting sick in the car - but it ended up being a 7 hour car ride and I slept the whole time!

#7

Wow unbelievable, may I ask who your doctor was in Omaha? I have an appt. Feb. 25th with Dr. Hutchins, I see his uncle (oncologist) here in Lincoln, so I was so very surprised at someone
finally going to Omaha, and maybe getting some info. about UNMC. Almost all my relatives live in
Omaha and said that UNMC was awesome??? This scares me to death having this procedure done, did they explain everything to you, were you could understand? Ok please let me know, oh where are you from?

Thanks so much for the info. Hope your having a pain free night, big hugs to you

Mrs Barb

#8

I responded privately to Mrs Barb but just so the rest of you know - Hutchins is my doctor and I really like him a lot!!

Small world!!