Feeding & diaper rash


#1

I’ve never been in a forum, but I need other parents who understand about having a short-bowel child. I said all this in my intro cuz I didn’t realize how this worked…I have an 11-month old who was born with gastroschesis & was left w/35 cm sm bowel & 40% colon. She was thankfully only on TPN for 2 months. She’s now getting Elecare thru feeding tube & I breastfeed her. Recently we’ve started giving her “real” food & now she has a HORRIBLE diaper rash. My dr is frustrating me, so I thought it might be better to talk to other moms that have been thru this. When I asked what to feed her, he said to just try things & see how they effect her - we’ve tried bananas, mango, sweet potatos, spinach, green beans, cheerios, avacado, crackers & baby cereal (she hated the cereal). I thought my dr would tell me certain things that are easier to digest or less acidic. Has anyone found success with certain foods or certain foods to stay away from? I think the diaper rash is related, but I can’t get it to heal. Her poor bottom is very raw & bleeding. We’ve tried aveeno, desitin, nistatin, patrolem jelly, aquaphor, corn starch, triple paste, citric-aid skin paste (when I called the dr that’s what he had me get). It’s gotten worse, so I replaced her formula w/pedialyte today. She normally gains 1 lb/mo, but she’s gained 1 lb in 2 weeks since we started feeding her. So it’s helping her gain wt, but it’s tearing up her butt. Has anyone dealt with this? Any suggestions? I would love to hear from someone!


#2

Have you tried Ilex or Burt’s Bees Diaper Ointment? Families on the yahoo
short bowel syndrome group have said very good things about these products,
and we’ve also been impressed w/them in our limited experience. Links to
both products are available on the short gut wiki page on stool and diaper
rash: http://grey.colorado.edu/shortgut/index.php/Stool_and_diaper_rash

Hope one of these will help!
Yuko

On Sunday 30 March 2008 at 09:51 pm, natalyasmom wrote:


#3

Our nurse had us try DOMEBORO powder. You find it at
Walgreens, it is expensive but works. You just add a
packet and a little water. I either sit my daughter in
it or just put a wash rag in it and hold it on her
bottom after that dry and I use triple paste (I know
you said that did not work). Have you tried
Boudreaux’s butt paste??

Also some foods I feed mine are toast, chicken
nuggets, fries, biscuits, eggs. I try to stay away
from fruit except bananas. I also try not to give her
popcorn, she loves it but it is hard on her stomach.
I know her diet is not great but I need her to gain
weight and I will have her eat anything that will help
that. Anyway bread products seem to be the best.
Good luck
— natalyasmom sbs-cpt8312@lists.careplace.com
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I’ve never been in a forum, but I need other parents
who understand about having a short-bowel child. I
said all this in my intro cuz I didn’t realize how
this worked…I have an 11-month old who was born
with gastroschesis & was left w/35 cm sm bowel & 40%
colon. She was thankfully only on TPN for 2 months.
She’s now getting Elecare thru feeding tube & I
breastfeed her. Recently we’ve started giving
her “real” food & now she has a HORRIBLE diaper
rash. My dr is frustrating me, so I thought it
might be better to talk to other moms that have been
thru this. When I asked what to feed her, he said
to just try things & see how they effect her - we’ve
tried bananas, mango, sweet potatos, spinach, green
beans, cheerios, avacado, crackers & baby cereal
(she hated the cereal). I thought my dr would tell
me certain things that are easier to digest or less
acidic. Has anyone found success with certain foods
or certain foods to stay away from? I think the
diaper rash is related, but I can’t get it to heal.
Her poor bottom is very raw & bleeding. We’ve tried
aveeno, desitin, nistatin, patrolem jelly, aquaphor,
corn starch, triple paste, citric-aid skin paste
(when I called the dr that’s what he had me get).
It’s gotten worse, so I replaced her formula
w/pedialyte today. She normally gains 1 lb/mo, but
she’s gained 1 lb in 2 weeks since we started
feeding her. So it’s helpin
g her
gain wt, but it’s tearing up her butt. Has anyone
dealt with this? Any suggestions? I would love to
hear from someone!

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#4

Thank you so much for responding! I actuallty wrote this response the next day, but it was during a storm & the power went out so I guess it didn’t get posted. Anyway, I took her to the dr the next day & it turned out to be a fungal infection. He had me put Nystatin & Hydrocortisone on it. It cleared up in a couple days. So he doesn’t think it was related to her diet, he said they just get these infections sometimes.

We had a very exciting change at that visit! He has her on tube feedings 12 hrs at night at 50 ml/hr. What a blessing! I feel like a finally have a normal baby during the day. - WIRELESS!! She just started crawling. I can nurse her & feed her whatever she tolerates. So I feel like were on the right path. Thanks for your info!


#5

I will be out of the office Wednesday April 9th thru Monday April 14th. For immediate attention please email Linda Taylor @ ltaylor@color-art.com 314-432-3000x608