I am a 28 year old female with CNM and am wondering if there are any other females out there with this disease. My symptoms have started progressing, and soon I will depend on my power wheelchair all the time. I am not/have never been on a ventilator.
Hi,
My name is Holly. I’m new here, at CarePlace, and I still don’t know how to get around.
I’m 33, and I was born with MTM. Were you born with this too?
yes i was born with the disablility. i am 28 now, was diagnosed at age 3 at the cleveland clinic.
Hello
My name is Toni and I live in the UK.
My father and I were diagnosed with dominant CNM almost 10years ago.
You can read our story at http://www.centronuclear.org.uk/theinformationpoint/toniandmike.html - the page forms part of a website which I run, called the Information Point for Centronuclear Myopathy.
I would love to learn more about you too.
Toni xx