what is the treatment of hypofertility in kartagener?is it essentially ivf & icsi?
Do you have PCD - primary Cilia dyskensia? We have a healthy beautiful 13 month old boy. And we had to go through ICSI. The procedure was like any ICSI except that the embryologist needs to use a special solution to select live sperm. Otherwise, everything was the same as a “regular” ICSI. You can also contact U of North Carolina at Chapel Hill for more info. Good luck. KK
how much did your treatment cost if you dont mind me asking.
The cost is like any IVF that needs ICSI. It didn’t cost extra because of PCD. So depending on the types of medication needed for the cycles and number of cycles needed and amount covered by insurance it can be anywhere from $0 to thousands. So it really depends.
In the UK, ICSI for PCD patients is covered.
IVF is covered by insurance in about 12 or 13 states - you may want to research that. I have PCD and tried to conceive for nearly 10 years. We were two weeks away from meeting with IVF specialists to set up the schedule needed for IVF and we found out we were expecting. He is now three years old and I’m very anxious to have another…still debating if IVF is the way I want to go! My brother also has it and was able to conceive without ICSI - our babies are miracles our family never expected to be blessed with. We treasure them dearly.
I was under the impression that male infertility was universal for people with PDC/KS. My son has KS and although it is a little premature (he’s 7) I am trying to pull information together about the possibility of him becoming a father - he’s already indicated that he wants 4 children!! I know technology will likely be vastly different by then, but I want to keep current as to what is possible now and into the future. Thanks.
No, Rita, male sterility is NOT 100% in PCD/KS. A high percentage of males need to have IVF in order to have kids, but there are a FEW who have been able to have kids the usual way. It would be good for your son to know that it’s quite possible he’ll need help, though.
He should also be aware that any and all children he has will be carriers of PCD/KS. Unless he has the very bad luck to get together with a woman who is a carrier, too, in which case, his children could have PCD/KS themselves.
Lars
Rita kartagener-cpt3349@lists.careplace.com wrote:
Rita - that’s correct about not 100% of PCD male offsprings not being able to have children w/o ICSI. And it is ICSI with IVF where they take the sperm and insert into the egg. I wouldn’t call PCD males as being sterile because they can have children w ICSI. THe problem is that the sperm in most cases are immotile - no cilia to propell the tails to move. Some males do have motility. Our 13 month old son is a carrier but we also know the chances of him marrying someone who is also a carrier is very slim.
lars kartagener-cpt3349@lists.careplace.com wrote:
In a message dated 5/25/2007 11:21:52 AM Eastern Daylight Time,
kartagener-cpt3349@lists.careplace.com writes:
Rita - that’s correct about not 100% of PCD male offsprings not being able
to have children w/o ICSI. And it is ICSI with IVF where they take the sperm
and insert into the egg. I wouldn’t call PCD males as being sterile because
they can have children w ICSI. THe problem is that the sperm in most cases
are immotile - no cilia to propell the tails to move. Some males do have
motility. Our 13 month old son is a carrier but we also know the chances of him
marrying someone who is also a carrier is very slim.
I have four sons. Only one of them has KS. Until this thread, I didn’t
know that all of my children could be carriers. We have had little confirmatiom
on his cilia function other than his history.
My son is 11 and I have not yet explain it all to him. I am still not sure
what to tell him. I would welcome any and all advice from parents who have
had this talk with their KS child[ren].
Thanks.
Sandy in South Florida
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HOW DOES THIS AFFECT FEMALE PATIENTS?
Any people in Ireland had to go through ICSI because of their condition? it seems theres no support over here for this condition.my fiance has it,and someday we want to have kids,so would love to get all the info we can before hand.
Kartagener syndrome is generally a rare hereditary disease occurred due to gene defect also known as “autosomal recessive.” This condition affects abnormalities of the respiratory tract and transposition of the organs. Individual’s facing this condition might get trouble in becoming parent so they move toward IVF or ICSI treatment. IVF is a great technique usually performed by the help of machines you can see at http://www.ilexmedical.com/ that increase its success rates. However, making choice among both the procedure need expert views, instead of believing on others.