My second daugther, age 11, was diagnoised shortly after birth. She has two sisters and neither have BPES. We are in Ohio and have a great surgeon in Michigan. My daugther has had 4 surgeries at ages 5,6,7, and 8 years. My question is we are entering in puberty and I am curious do you have any information on determining whether this is type I or type II. We are getting ready to take her to a pediatric endocrinologist in Columbus soon. She had an ultrasound 2 years ago and her ovaries were considered very small for her age. My daughter is in the 5th percentile and is quite small for her age. My other question is that she scars easily and had some scarring following her surgeries even though the surgeon specialized in eye surgery and was a plastic surgeon. Any information would be appreciated.
Thanks so much