My son just had his first seizure about 1 1/2 weeks ago. I was just wondering if anyone else’s kid has them. How often? Are they on medication for it? If so, is it working? I’ve heard about 20% of FX kids have them. He was put on medication the day after; I guess to keep him from having one until he sees a specialist, and then we will go from there. Just wondering.
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Hello, My son had his first seizure about 2 years ago. He was put on Depakote sprinkles twice a day and later was put on a vitamin called Carnitor to boot the Depakote. He still has little focal seizures when we are in the car but he has not had a big one for about 6 months which is great for him he was having them ever other month. If you have any other question feel free to ask this is a very scary time I know.
Erin
Mom to Grady 4 ½ Fragile X, Autism, Epilepsy, and ADHDStep Mom to Dawson 7, Sierra 12, Blake 15, Evan 16, and Aaron 18> To: lovemygrady@hotmail.com> From: fragilex-cpt7830@lists.careplace.com> Subject: [fragilex] FX and seizures> Date: Sun, 17 Feb 2008 23:15:27 -0500> >