My son has noonan’s syndrome and the endocrinologist wants us to start him on growth hormones but his geneticist does not. The geneticist says children with Noonan’s often dont respond go growth hormones and need a large dose, and a larger does comes with more side effects. She also said children with noonan’s syndrome are more susceptible to cancer and growth hormones therapy (GHT) would not be good if that’s the case. She said there are all new developments from within the last 6 months (today is 11/19/08). What have other people’s endocrinologists and geneticists said about GHT and Noonan’s?
mom to matt