HD : Why always in the UK?

Hirschsprung's Disease
#1

I have my google News set to find articles about HD and they are few and far between, but it seems like 90% are non U.S. The UK seems ok in writing articles about HD, but I hardly see anything from the U.S.

I wonder why that is?

The good thing is these articles make me feel so blessed, My son’s have had a much easier time of it then others have. (one article was from scottland I think and the little boy had a feeding tube and his little sister died b/c of HD)

now these are newpaper articles, not medical papers, just stories of every day people, I find it interesting.

#2

ok, I sent a friend’s request w/ my addy

#3

There is another web site called Hirschsprungs_Support_Network , there is a lady on there that just wrote a book on Hirschsprungs. It’s called Hirschsprungs Disease- Solving the Puzzle. She is just having it published. She was just asking how mant people were intrested in purchasing one. They will run $34.99 plus shipping. All proceeds go to John Hoppkins for further research on HD. If any one is intrested.

#4

I’ve often wondered the same thing. I think I read that races other than caucasian tend to have fewer cases of HD. Since it is a genetic disease I wonder if it is more common in people of European descent? Interesting…

Jo

#5

and I often wonder what they mean by 1-5000 babies born w/ HD… is that world wide? or is the U.S.

#6

my grandson is in the hospital at the moment in uk just had his pull-thru yesterday we were told one in 5000 in the world born every year but were told this week one in 3000

#7

Here is the message if any one wants it.
Shannon

Hi all - Good suggestion John, Can I have everyone e-mail one more time so that I can get a count of everyone who wants to buy a copy of Hirschsprung’s Disease - Solving the Puzzle? This will help me know how many I need to order on Monday (I’m thinking 50 or so to start).

Thanks so much!

Nicole

#8

Hi, we werw told by our Surgeon a few months back that HD is more commonly found in caucasian european descendents. In our case, my husband is 100% German so it made sense.

#9

ohhh, ok I see. That is interesting, I don’t think I had ever heard that, but now that I look at this board and at the faces that have shared their pics, it does seem to be the case here to.