I experience all kinds of diffrent pain in my joints,
back, shoulders neck, hips, arms go numb sometimes.
One thing that helps alot is Chirocractors, heat and
rest. You gotta take time to rest. I am an R.N and I
have C.C.D. and my child who is 4 does not have it.
Thank god. I must have been a sponanious case.
Althought my mom was missing a few permanent teeth.
She retained baby teeth. That is the only similarity.
Pain is a constant problem.My boyfriend does’nt
understand sometimes. I wish he could talk to your
fiance. No specialist that i know of. i’m from
Califorina originaly. Now i live in Miami Florida.
Most M.D.'s have never even heard of it. I’m missing
my right clavical, Several teeth, and have scoliousis
of the spine. I live a great, fulfilling life and I
try not to let my defects stop me. I skateboard, play
with my kid, ride on my boyfriends Harley. At times I
over do it and am in pain layed up. But us with C.C.D.
manage. We’ve had it our whole life. Yes lately its
getting worse (pain), but the only thing you can do is
therapy. As far as i know heres my myspace address
www.myspace.com/birdy1313 or my email email@example.com
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