I have PV (polycythemia vera) and am getting regular phelebotomy’s. I also went through radiation therapy for breast cancer.
This is how the PV was diagnosed (because the tamoxifen pills were turning my feet black). About 25 yrs ago I was in the hosp. and the dr. told me my red blood cells were enlarged and mis-shaped, but he was stumped and nothing further was said or done about it. I don’t know if it was the beginning of PV or not - but am mystified all the same. My older brother had high iron and had to get blood draws regularly (once a month) - but later traveled oversea’s to work and had to forego the treatment. He died last year from an aortic tear and pulminory embolism. I wonder if he had PV and did not know it. On my mother’s side of the family (her uncles and father) all passed young from heart conditions (in their 40’s). . Is it possible they had PV, the gene passed on to my mother, skipped a generation, and was passed on to my brother and myself? I have 3 other brother’s and children I am concerned about if this is true. I am confused. The Dr. ordered 2 sets of blood draws one wk. apart from each other, and then I became anemic. I go back for a CBC and most probable Blood Letting in about a week. I actually feel something is not right now - red face - burning feet - head aches -
etc. Also, my platelets go up after every session, though still in good range, I believe.
How does one tell if it is genetic?
Good Luck to All and Thank You !
~ poetry ~