Well, before I get to the question, I want to apologize to everyone for being so absent and distant this last month. December was not my shining moment month, that’s for sure. Aside from seeming to be sick quite a bit of the month, recovering from the dog bite, and my frustration and withdrawal from the world, I did have some technical issues as I built a new computer and learned how to work with a 64-bit OS. I was also hoping to be able to report something of note with the new GI I am seeing.
As some of you know, I have recently started seeing a new GI at the University of Washington. Last February when I had my first EUS done, the GI specifically mentioned the ducts being enlarged and that if I didn’t change my lifestyle I would loose my pancreas in 5 years. At first the GI I was seeing seemed so much better than some of the ones that I read about here from your experiences. Over the last few months, he seemed to fixate on enzyme levels for some reason. He would also imply that I was a closet alcoholic who was still drinking daily. I got pretty tired of it all and had my PCP refer me to UW. I was hoping to at least find out a little more.
Now, it looks like there are more questions than answers. Last week I had a mesenteric doppler duplex done to measure the bloodflow in my abdomen. Nobody really expected it to show anything, but it was done to rule anything else out. It came up normal as expected.
Yesterday I had an EUS done. I was wondering how this would come up as it seemed as if my pancreas was getting worse. I seemed to be having attacks more often and vomiting quite a bit more. Well, imagine my surprise when the doctor said that the ducts appeared normal and there was “minimal” damage to my pancreas. He went on to say that in his opinion (the doctor who did the EUS is actually my GI’s partner so I haven’t discussed the EUS with him yet) the damage to the pancreas could not account for the severity of my pain and other symptoms!
I was just wondering if any of you have had similar accounts. I know from past posts that some of you have had less than great experiences with doctors, nurses, and staff, but I can’t remember if this exac issue has been discussed before.
So I was just wondering- how many of you have been told that the damage to the pancreas does not match the severity of your symptoms? I am feeling somewhat frustrated and perplexed. I am tempted to stop taking my meds and not even bother with specialty doctors anymore. Do I have something else going on, is it all in my head, or is the doctor just mistaken?
Any input would be greatly appreciated and I resolve to be better at posting and responding this year. Hoping for minimal pain for all.