Hi
My uncle just died of MEN1 without knowing he had it (autopsy). Mom probably has it based on symptoms and based on what I have read I probably do to. I’d like to know know a few things…
- Where can you get genetic testing and hopefully keep it out of your medical record? (having had breast cancer the last think I want is this as a diagnosis in my medical record with an impending change in jobs)
- Is there a list anywhere of the USA centers that are best at treating this or a list of doctors who are considered the experts in the USA?
Thanks
Carolyn