Hi, I am a 17 year old mother of a child with ACC. He turned one month today. We had an MRI and had to see a pediatric neurologist. I didn’t really understand much he said. All I really got from him was that he thought the only problems we would have were maybe some mild developmental delays. But already at one month (and 5 weeks premature, not due til February 16!), he is rolling over! Not just once, but anytime he is one his tummy or back! His reflexes are good, vision so far is awesome, and grip and muscle tone is tremendous for him. The doctor also pointed out that he is soothed by my voice. More so then dad’s. When I talk he looks at me and acts like he listens and understands (even though we know he don’t) but hey, at least it’s good signs right?
Anyway, the reason I’m telling you this is because I want to know more, and be able to understand it. Instead of just telling people, ya he has ACC, no clue what it is and does. I mean I know what it is and what it does by what the doctors have told me, but I want real people with real stories to tell me how good it could be or let me know and get ready for the worst possible synaireo.
Let me know,